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Quote taken from the article above: "Venturelli mentioned a man in his 80s who’d come in for his follow-up visit, mostly recovered. His son, who’d also been infected, hadn’t fared as well. When Venturelli tried to refer the father to a specialist, he said he was too busy these days. Covid had...

Italy's Bergamo is calling back coronavirus survivors. About half say they never fully recovered. https://www.washingtonpost.com/world/2020/09/08/bergamo-italy-covid-longterm/

Sufjan Stevens: Songwriter 'cannot walk' after being diagnoses with a rare disease Sufjan Stevens: Songwriter 'cannot walk' after being diagnosed with rare disease In a rare Instagram post, Sufjan Stevens said he had been diagnosed with Guillain-Barre Syndrome “Last month I woke up one...

https://clinicaltrials.gov/study/NCT05164094?cond=EBV%20vaccine&rank=4

I don't know if this was mentioned, but could this be myofascial syndrome? I've read that it can be implicated in M.E. Sorry you're dealing with this.

Introduction: There are difficulties in creating direct antiviral drugs for all viruses, including new, suddenly arising infections, such as COVID-19. Therefore, pathogenesis-directed therapy is often necessary to treat severe viral infections and comorbidities associated with them. Despite...

infection-associated complex chronic illnesses such as #LongCOVID, #Lyme and #MECFS. As such, we will take insurance and work to help patients to access expensive off-label meds through ethical formularies such as @mcuban's @costplusdrugs where expensive meds can be found at a fraction of the...

https://www.mountsinai.org/about/newsroom/2023/mount-sinai-receives-six-million-grant-from-the-steven-and-alexandra-cohen-foundation-for-the-clinical-care-of-long-lyme-disease

Significance Alzheimer’s disease (AD) is a neurodegenerative disease characterized by amyloid plaques, neurofibrillary tangles, and microglial activation. Therapies targeting amyloid beta have shown positive effects in subjects with AD. Nasal anti-CD3 has been shown to treat animals with a...

Agree. They should also use terms such as debilitating chronic illness that destroys lives instead of 'condition' in their titles.

People with ME have been protesting in Cambridge, calling for doctors nationwide to receive better training on the condition. https://www.bbc.com/news/uk-england-cambridgeshire-66844565

How long did it take that garbage feeling to turn into PEM? Felt flat after exercising during PVFS, and then I went straight to getting PEM years later.

Remember folks, just because you know someone with 5+ infections and they "seem" fine doesn't mean they are. Animals, including humans, fake being strong and healthy and hide being sick. From the elephant app: No one returns to work after their 5th infection. This means we are on schedule for...

The main reason is that the HPA axis hypofunction is a consequence, not a cause, of immunological alteration. Also, using hydrocortisone could aggravate immunodeficiency and EBV reactivation.

Well said. My muscle strength switches on and off for no obvious reason. I try to lift small amounts of weights on good days to maintain some strength, small amounts are better than doing nothing, but I have days/weeks/months that I can't do 4 reps so it's full stop. Same with muscle...

Abstract Post-infectious conditions, where clinical symptoms fail to resolve even after pathogen clearance, present major health burdens. However, the mechanisms involved remain poorly understood. In Chagas disease (CD), caused by the parasite Trypanosoma cruzi, antiparasitic agents can clear...

Summary Menopause is the cessation of ovarian function, with loss of reproductive hormone production and irreversible loss of fertility. It is a natural part of reproductive aging. The physiology of the menopause is complex and incompletely understood. Globally, menopause occurs around the age...

From the article: "The red flags that Twinam had an unrecognized chronic illness began after her suspected case of mono in high school. She says she feels she never fully recovered. One big tell: In college, after exercising, Twinam would not experience an endorphin rush.. Instead, she told her...

Abstract Multiple sclerosis (MS) is an immune inflammatory disease that causes demyelination of the white matter of the central nervous system. It is generally accepted that the etiology of MS is multifactorial and believed to be a complex interplay between genetic susceptibility, environmental...

I had refreshing sleep w/o cognitive impairment the first 11 years of M.E. from a sudden viral onset. The type of virus I got was insignificant , the virus attacked my thyroid. An M.E specialist with 25 yrs experience dx me with 'atypical M.E" in 1992. Over the years I eventually developed...