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This is why I feel any references to "spoons" ought to be retired permanently. Some people who were open minded enough to try and understand what it's like to live with chronic illness now assume that people know how many spoons they start the day with. Why wouldn't they? It's what the spoon...

When I still used social media, I'd capitalise any hashtags I made up for just this reason. It means screen readers used by visually impaired and blind people can make sense of them, but also people with squelchy ME brains!

It's disappointing that they don't say whether this is in addition to the horse tablets and bleach, or instead of.

"Sorry. Had an ME moment. Completely forgot what would happen if the medical profession found out we'd made up yet another name for something half of them don't believe exists in the first place."

That's quite an oops, isn't it.

That's a good question. Is known efficacy of a drug on a symptom enough evidence? Presumably that's how at least some drugs are applied in trials. It doesn't seem unusual for it to remain unclear how some drugs work even decades after they were introduced, so the relationship between drug and...

I did wonder whether that might be the case, but I can't read numbers and statistics very well (dyscalculia). I suppose it's one of those things that has to be noted if you find it, because if it's also found in larger follow-up studies it could be something—but equally it may not be anything...

Test Duration= 125 seconds Number of false starts= 0 Average response time= 516 msec over 25 attempts. Your results show that your alertness may be suboptimal. Consider medical evaluation. It is 4:25am, though. :laugh:

I'm not sure they do, they just report it. It's possible they don't yet have an explanation.

That's going to work marvellously well in a country where the annual statement of earnings and contributions issued to all taxpayers has been known as a P60 since WWII. Might I suggest P45 instead? For him, I mean.

I understand why they want to do this, but even if it attracted support from heavyweight governmental organisations, it would take years to implement internationally. In the meantime we could well discover more about what causes these illnesses, which would probably mean starting the process...

Maybe whoever invented Chronic Fatigue Syndrome trademarked it so that we have to treat it as a proper noun, like Toilet Duck.

Another study finding some differences between patients with shorter/longer disease duration. I don't really understand what sarcolemma fatigue is, but it doesn't read as if these differences are simply the result of adaptation.

Oh, absolutely. I only meant celebrities who don't have any vested interest, such as Martine McCutcheon and Marina Diamandis. Sometimes they may post (or be quoted as saying, not necessarily accurately) things that are slightly frustrating, but they're not actively working against fellow...

Glad you've got some suggestions that might be workable @Haveyoutriedyoga. I hope they work out, it can make such a difference. You seem to have the opposite of what I experience. In my case, simple sugars reduce my muscles to jelly so that I stagger about as if I'm drunk, and also induces pain...

The trouble is that, as we learn about our illness, most of us probably go through phases where we look seriously at strategies we'd later consider nonsense. There can't be many ME patients who haven't at some stage got hooked into trying supplements, for instance, or enthusiastically sent...

No, it's an externally imposed judgment. As such it has no place in science.

I'd recommend just liberating him, and letting the people who understand pain stay on to run it.

Could you dissolve sugar or honey in bottles of water? They might need a shake before you put the straw in, but there's no other additives and it'd be very cheap. It might need some trial and error to discover how much you need to add, but if you fill some sports-type water bottles with sugar...

There's also Stuart Murdoch of the Scottish band, Belle and Sebastian. I hesitated a moment before contributing, in case focusing on people who've achieved a lot just rams home for some members how much of their potential ME has destroyed. It's also easy to forget how much people's success may...