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The axis may be tilted for some of us, but it has to be for the doctors and the ethics board too. They see people with a puzzling but potentially reversible condition, who are (apart from ME/CFS) fairly healthy. It must be difficult to justify use of a risky drug whose benefits are uncertain...

No, but I've just written mine down and will try handing them to my new GP next week! :D Start as you mean to go on, as they say.

It's that bloody word wellness again. These projects can be great for social cohesion, such as bringing together people with very different lives to work on something shared. For giving a voice to people whose stories rarely get heard, like refugees. For reducing isolation, e.g. people whose...

At least they corrected that.

And from what I've read from the sharp-eyed folk who combed through it, the claim of a non-null result depended on that data being thrown out.

The teenagers they've met must be from outer space! A lot of the 13-year-olds I've met don't want to admit in public that they even know their parents, let alone emulate them.

Glaikit crossword no. 3742 1. Touting wordy asinine theory scurrilously, initially (5)

Even if that were true, or meant anything... ...empowering how? And what knowledge? No one seems to understand long Covid any more than we do ME/CFS. What peace of mind? There's no treatment, and if you've got it, there's a pretty good chance you already know you do. In big, flashing...

I studied it for a time, but not for ME. I found it tiring and ultimately had to abandon it (I was working at the time, and even once a week it was too much on top of a job), but it was useful in that it helped me understand the postural differences I thought needed correcting were best left...

Hear hear. I've read it all now, and it's a very important contribution.

The council tax disregard is probably the least known about. My friend's father's probate grant was held up slightly by the insistence of his local council (who only found out he'd had dementia when she informed them of his death) of asking for a copy of his letter of diagnosis so they could...

From @MSEsperanza: @Jonathan Edwards referred to that paper a couple of times and most recently I think in relation to his The 'writing on the wall' hypothesis so thought a thread of its own could be worthwhile. References on S4ME see here...

From @MSEsperanza: Jekyll and Hyde: the transformation of HLA-B27 Abstract: HLA-B27 can adopt a homodimeric form. In spondyloarthritis, such aberrant expression of B27 may override a tissue-specific inhibition of major histocompatibility complex (MHC) class I-dependent events, leading to...

I'd have been tempted to bill him too, to let him show the audience what he is. After all, if he destroys his credibility himself, pwME won't be accused of abusive tactics. Again. :whistle:

When it comes to Nath, I'm still not sure whether it's arrogance or Stockholm syndrome. It seems rather clearer with Walitt.

Thank you for the explanation. Maybe DecodeME will offer a pointer? Though I suppose it might not necessarily be associated with changes to a specific gene, certain HLA profiles, etc...

Is there an anti-graffiti team to scrub it off?

I think you should publish it as a priority. High time everyone realised that how the doctor feels is what matters.

I haven't read it all yet, but like what I've managed so far. Yup.

There is that, but it's also common for people to overestimate their physical activity. We've probably all known folk who thought they were supremely fit and wore the shiny gym gear to prove it, even though they'd have improved their fitness much more by putting on a tatty fleece and stacking...