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In my family's experience, that should read: Decades ago, people were less able to challenge their doctors Partly because knowledge was guarded jealously by a paternalistic system (prescriptions written in Latin?), partly because if you fell out with the only GP in your community it might cut...

Yes, this is puzzling, and also (at least the remissions) something I've experienced. But I suppose if an immune mediated switch can go the wrong way to trigger ME or cause PEM, it can presumably do the opposite. I'd like the sleep dysfunction accounted for too. It's always seemed central to...

I put it badly, but that's what I meant. I have poor balance, and both music and light can make me fall or stumble when I'm in PEM or very tired. I need visual input to stand upright, and if there isn't the bandwidth for that, off I go. I think it's made worse by not having any filters to start...

That's really interesting. Is it because the sound forces you to shift attention to it, and you can't deprioritise it? (I ask because I have trouble like that due to autism, and wondered if it might be a shared trait.)

I'd like it to account for the fact that some people feel better with an infection—and for a minority, very much better for a short time after some vaccines.

Yes, I remember a relative being prescribed benzodiazepines for about a month, and it struck me how much her cognitive function resembled mine. She couldn't make connections, describe things, or hold onto more than the simplest thought at once. Interestingly, she also acquired some of the...

I've decided to prepare myself for the results showing no clear link, or being a bit too confusing to interpret straight away. It would be so good to have something to focus on, though, even if it still leaves a long way to go to trial disease modifying treatment. Researchers will struggle to...

I can see why they wouldn't want people with military grade twaddle-spotting apparatus, though, who are also likely to ask highly inconvenient questions.

Biology being what it is, I'm less sure about that one—but yes, it's a great idea to think it through.

It may not be directly relevant, as substantial numbers of people with ME don't really unload their muscles. They might be able to do less, but unless they're severely ill they often have to carry on as best they can. Their activity pattern doesn't resemble bed rest, space flight, or immersion...

Maybe they're developing it into a competitive sport. Next paper will describe the bonus points for creativity in derisive acronyms for patients.

Done!

It was several years ago, too.

It does, and I suspect the ideas was try and take people off PIP because "support already exists". Except that it doesn't, DFGs are quite specific and don't cover ongoing costs. Same goes for the small aids that people get via their local authority. I think it may depend on the council's...

I'd choke on that! Not exaggerating, either. :ill: Come to think of it, a south Asian friend often makes that—I don't have the recipe and hadn't thought about quantities of cumin. I'm only ever wiped out for a couple of days after eating it, because she lives almost two hours' drive away and...

Those quotes you posted are so ridiculous I actually laughed. This kind of nonsense is the preserve of the desperate-for-attention, and I'm not going to reward him with mine.

Another Guardian article about the proposed changes, this time from a psychologist: https://www.theguardian.com/commentisfree/2024/may/01/rishi-sunak-welfare-support-depression-anxiety

I'm quite curious about how you swallow a teaspoon of cumin!

I'm not sure it is, TBH. Quite a lot of it seems to be more about them imagining that people housebound with anxiety and depression are a bit fed up, and that putting in a couple of grab handles and a raised loo seat will cover all the additional costs of people with mobility problems. Basing...

Might help to have a look at Frances Ryan's Guardian column for today: https://www.theguardian.com/commentisfree/2024/apr/30/ministers-disabled-people-vouchers-government-groupon