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I'm pretty confident that this is not an act. 60.000 followers are seeing his tweets in which he compares ME/CFS to the time he broke his ankle or where he calls legitime concerns about GET being harmful, 'whining'. I think he just snapped when he saw MPs in parliament speak up against the...

Apparently Pete is his mate (EDIT: I think this tweet was found by MEMilitant, I first saw it on his twitter feed).

His actual name is David Blanchflower, and he seems like an influential labour economist. https://en.wikipedia.org/wiki/David_Blanchflower

Danny Blanchflower has more than 60.000 twitter followers, including some influential people. Some of them might get interested in what’s the fuss about. For some reason unknown to me, Blanchflower always retweets the message he is responding to. So his followers are also seeing some of our...

Is nobody publishing their feedback online (here on S4ME)? This could help spark the debate and inspire others to make comments as well.

Same here.

Adherence to what? GET and CBT?

This might be of interest: Suzy Chapman and Mary Dimmock have collated this reference list of neurological studies. It was used to argue that ME and CFS should remain listed as a neurological disease in the WHO classification...

I have responded with the following brief comment:

Valerie Eliot Smith has responded to my questions. Since this is all open access on her blog and the subject is meant to be debated within the ME community, I assume it is ok to repost her response here:

https://www.researchgate.net/profile/Jemel_Aguilar

I unfortunatedly know little about this, but there is another Belgian ME advocate who has been following up on this for the European ME Alliance (which includes Invest in ME Research IiMER). You can follow her on twitter:

Same here. It feels like I constantly have to put in effort, simply to keep up a sleeping rhythm that is close to normal. A bit like you have to keep running on a treadmill to stay at the same place.

I have posted the following response on Valerie Eliot Smith's blog, Changing the narrative #3: "Thanks for writing this blog. Creating a media steering group is an interesting idea. I do have some questions about it. 1) If the media steering group is constituted by a coalition of...

The ME community funds many researchers through organisations such as OMF or MERUK. Do not think that your situation is that different. You're not asking for money, but offering us your skill and expertise much like these other reseachers. I'm very grateful that people with your skill and...

I tried to, but it didn't work. When I push the button "Submit", nothing happens.

This article gives a good overview of how restricted our knowledge about central sensitisation actually is: https://f1000research.com/articles/7-1325/v1

Merged thread I saw this on the Facebook page of the International Alliance For ME (IAFME):

Thanks for posting this @Binkie4 The letter I've sent by mail and email regarding Chris Burton has not yet received a response except for the template that was given to everyone. So I guess involving your MP was a smart move that made a difference here. Thanks very much for doing this. The...

This is a Belgian study, so I had a quick look. Like their previous publication (https://www.s4me.info/threads/exercise-induce-hyperalgesia-complement-system-and-elastase-activation-in-me-cfs-a-secondary-analysis-2018-polli-et-al.6243/) this is a secondary aalysis, an additional analysis of a...