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  1. ME/CFS Science Blog

    NICE guidelines: topic experts and the behind the scenes

    Just to be clear, this was about a review of the previous guideline. It seems unrelated to the current proces of writing a new guidelines. Do we have formal evidence of this, or is it just the impression of people close to the developments?
  2. ME/CFS Science Blog

    The neuroactive potential of the human gut microbiota in quality of life and depression, 2019, Raes et al

    Study from Belgium. Find it a bit difficult to understand. Here's a Forbes article about the main findings. https://www.forbes.com/sites/victoriaforster/2019/02/04/new-study-indicates-link-between-depression-and-gut-bacteria/#146f0d3445d2
  3. ME/CFS Science Blog

    Chronic fatigue self-management in primary care: a randomized trial (2013) Friedberg et al.

    I’ve been reading this 2013 study by Friedberg et al. Chronic fatigue self-management in primary care: a randomized trial. This isn’t a study of ME/CFS, but the paper claims that 39% of the 111 randomized participants did meet diagnostic criteria for CFS (Fukuda-criteria). I don’t think the...
  4. ME/CFS Science Blog

    Concerns about Cochrane

    Could you explain this a little more? Do you mean that he focuses too much on the pharmacological industry as a source of bias + his aversion to vaccines and anti-depressants?
  5. ME/CFS Science Blog

    Use of antidepressants for/with ME/CFS?

    This is an interesting subject. I think the term "antidepressant" for these drugs can be a bit misleading because they are also prescribed for sleep- and pain problems. They have an effect on neurotransmitters with many functions and complexities in the human brain. That being said, I do not...
  6. ME/CFS Science Blog

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    Thanks, Inara. It's not really a summary though. I've just picked out some subjects I wanted to criticize. Ravn's post above shows that there are many other issues that I didn't highlight. Hope that many others will be submitting feedback as well, even if it's only a short comment (mine was a...
  7. ME/CFS Science Blog

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    Because there is a factual error in the abstract, I've written a short comment I would like to submit to the journal. I do not have experience with this however. Are there any forum members who do have experience with submitting letters and could help me out in PM? Many thanks in advance...
  8. ME/CFS Science Blog

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    Me neither. So it is true: tags in an edit don't work! Thanks for pointing that out. Gonna delete the original message and repost it.
  9. ME/CFS Science Blog

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Thanks. I was reading the pdf provided by Tom, so I overlooked that. I keep getting this error message, if I want to access the actual website. Anyone else has this or knows a way around it?
  10. ME/CFS Science Blog

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    I think they have. They've indicates this in their updates of their CBT-model. Knoop et al. 2010. The central role of cognitive processes in the perpetuation of chronic fatigue syndrome. “There is less support from treatment studies for the role of the other perpetuating factors that have been...
  11. ME/CFS Science Blog

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Wonderful blog post. I think this shows how important you still are to the ME-community. Just one minor remark: I doubt this is true. The Vercoulen model used to include somatic attributions but has ditched this, since it proved to be irrelevant in their studies. Don't think the PACE or FINE...
  12. ME/CFS Science Blog

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    "Participants were also asked to complete a visual analogue scale rating their fatigue severity on a scale of 1–100."
  13. ME/CFS Science Blog

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    We all know most people read the abstract of an article, not the actual text. So many would get the false impression that this study demonstrated that fear avoidance beliefs predicted fatigue at follow-up, while it didn't. Should we consider this an accidental mistake, given that virtually the...
  14. ME/CFS Science Blog

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    Isn't there a mistake in the abstract? It reads: That wasn't the case. I suppose they mean: "Stronger fear avoidance beliefs at T1 were associated with higher fatigue at T1."
  15. ME/CFS Science Blog

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    Ok, here's what I will be submitting: 1) There is a consensus that GET is not effective in ME/CFS This draft report claims that specialist clinicians and researchers maintain that graded exercise therapy (GET) is effective in ME/CFS. In doing so, it makes reference to the 2017 Cochrane review...
  16. ME/CFS Science Blog

    A general thread on the PACE trial!

    There was this case where he defended Bleijenberg/Knoop against criticism by Twisk and Corsius. Thought that was remarkable because the paper and critique had nothing to do with GET. This was only a month ago, see...
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