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Thanks for sharing your viewpoint @Gaspard

Yes, that's sort what I would like to see the evidence of. I've already saved the following studies: Cairns et al. (2019) Incidence of Lyme disease in the UK: a population-based cohort study Nowakowski et al. (2003) Long-term Follow-up of Patients with Culture-Confirmed Lyme Disease Rebman...

I would like to learn more about the 'chronic lyme' issue but it seems like a rather difficult subject to find the right material. I'm mostly interested in basic epidemiology. Does anyone here on the forum know of any good follow-up studies of acute Lyme disease? A bit like the EBV-studies we...

There's a doctor in Belgium who claims that CFS is just misdiagnosis, that there's no such thing as CFS etc. And while I appreciate his efforts to try to find misdiagnosis and show that some CFS patients really have lupus, a sleep disorder or something else, I find his statements also...

I have no real experience with this, but I suspect a small RCT would take more like 3 years instead of 5. Edit: there's also an ongoing RCT on LDN in ME/CFS by Yared Younger, it started in 2016 but has been temporary suspended. https://clinicaltrials.gov/ct2/show/NCT02965768

I don't like how LDN is currently being hyped without there being any reliable evidence for its use.

But what is the alternative then for patients diagnosed with FND? Is there a more specific, alternative diagnosis that would be a better description of their medical condition? I suspect that not having a diagnosis can be quite horrible. So if there's nothing to fill in the place of FND, I can...

I don't think that would be a good thing. The nanoneedle is nowhere near providing anything useful clinically. Need bigger studies and replications first.

It's MEawarenesshour in less than three hours, so those wanting to participate could consider waiting with sharing and retweeting these articles on Twitter until then. Don't forget to add the hashtag #MEawarenesshour More info on MEawarenesshour in this thread...

If doctors are giving off-label treatments then I think the right thing to do is to record outcomes as good as possible and publish these (a bit like Oli Polo did). Then we would have some very crude sense of safety and maybe even effectiveness (if patients don't improve at all that could...

I'm having a hard time understanding why case reports are published or how they can be useful, unless it's about some rare disorder or to explain the practicalities of an intervention It seems that all the biases and problems we face in understanding wether a treatment works, are simply ignored...

So there have been more RCT's on non-pharmacological interventions than on pharmacological interventions (even though the latter includes nutrients and homeopathy). And the most common type of pharmacological intervention tested is psychiatric drugs. Another five trials looked at the stress...

Two examples: Heart Rate Variability as Indicator of Clinical State in Depression Anxiety disorders are associated with reduced heart rate variability: a meta-analysis I haven't really looked into this, but from briefly scanning articles I suspect that HRV is just an indicator of ill...

Apparently it's on old idea from 2015-2016, that is getting new traction, I think mostly from german ME/CFS patients and patient groups. There's a twitter account devoted to it, with more than 3000 followers.

It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I understand it, the main idea is to take one hour per week (Wednesday 8 PM London time), where we all tweet about ME/CFS so that it becomes a trending topic...

I'm not a big fan of these articles, to be honest. I think they tend to overstate or dramatize a lot of things, mostly in relation to Simon Wessely.

I think there's isn't a full publication yet (the authors might sill be working on it) so I think we'll have to wait to know what these figures mean. Here are some other studies on economic burdon in ME/CFS, if you don't know of them already: Brena & Gitto (2017) The economic burden of...

That would surprise me, to be honest. Anyone else knows which study this could have been?

Not sure what study you're referring to here.

They say they consulted with the University of Bristol CFS/ME Young Persons Advisory Group (YPAG). Does anyone know more about them?