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Yes! That statement is in the explainer box attached to the diagram I just posted above. That diagram and that explainer will be used in exactly that way, creating wiggle room for use of Fukuda. If anyone has read the Jason study the diagram is from (or based on), I'd be interested to know how...

That passage is followed by a diagram which is either from or based on (haven't read that study, so can't tell): Jason LA, Kot B, Sunnquist M, Brown A, Evans M, Jantke R, Williams Y, Furst J, Vernon SD; Chronic fatigue syndrome and myalgic encephalomyelitis: towards an empirical case definition...

Thank you, @Arvo, I'll take you up on that offer since doing this fries my brain more than I expected. I will make an attempt, though, to post and translate the continuation of the passage I just posted. I agree with you. Still using Fukuda in the context of this research programme puts some...

In English (machine translation, marginally checked and corrected):

To start with, here are relevant quotes from the "programme text": On page 7 and 8 under "2.2.2 Criteriasets voor ME/CVS" ("2.2.2 Sets of criteria for ME/CFS"): In Dutch: Give me a second to make and check a translation...

I do think Fukuda was not ruled out in a straightforward manner, but statements in the ZonMw documents can certainly be interpreted as implying that Fukuda criteria should not be used. They read like highly negotiated compromise passages to me (meant to be acceptable to patient representatives...

Thank you for providing that document and for shedding some light on how it differs from the Lifelines tool!

Some more remarks regarding the 'Fatigue (CDC)' page... The page states "The CDC symptom survey as used in Lifelines assesses 8 symptoms that are part of the diagnostic criteria for CSF [...]." 'As used in Lifelines' suggests that they may have created their own short form of the CDC symptom...

Addressing those pages and instruments one by one. 1) Fatigue (general) Asks questions about tiredness, fatigue, and exhaustion, their effect on functioning, duration of the symptom, and also elicits self-report of CFS, if applicable. (Note: The Fatigue (CDC) page (more on that later) states...

Trying to pull together some of the things I have learned about the claims made by ME/CFS Lines regarding their cohort and how they could (potentially) be unpicked by mining the information on Lifelines Wiki. (With, again, many thanks to @Arvo). First, here's the current project page on the...

Hi, Just coming here to thank everyone for their hard work unpacking this, especially to @Arvo for digging so deep. Also, a heads-up to anyone who still thinks about sending an official complaint to ZonMw (the funding organisation). I understand it would need to be received (in paper form)...

My partner encountered the same problem and going by posts on Twitter, this happens quite often. The IT team of the petition website advised by email to use a different browser and also to try using a password of 15 characters or less (but more than 7). This did not solve the problem for my...

I thought it might be useful to put a short reminder here that suggestions for the 11th ('recovered patient') position on the Independent Advisory Group need to be submitted by Sunday.

The statement about the Dutch guidelines is not quite right. What was published in 2018 was the Dutch Health Council advice for the Dutch parliament, not a guideline. The statements about GET and CBT in the document have lots of nuances. The Health Council saw 'no reason' to recommend GET...

According to the Dutch Wikipedia article for Q fever (https://nl.wikipedia.org/wiki/Q-koorts) the Dutch Q fever outbreak that started in 2007 was the largest to date in the world. It is a fairly recent episode of an infectious illness leading to longterm ill health in many and got quite a bit of...

It's actually quite a good translation ("reclame" = "PR"). Thank you for pointing out the irony. It hadn't been completely lost on me, but you word it so well. Note the heavy lifting that the symptom tracker study by Tim Spector's team does in the article: since it doesn't find a "tsunami of...

Merged thread 'Far too much advertising is being done for Long Covid' A Dutch article about Long Covid has appeared on the website of Syp Wynia, 'Wynia's Week'. Wynia is a journalist who previously worked for Elsevier Weekblad, a Dutch conservative weekly magazine. His website has a reach of...

At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are relevant to [clinical] practice ["praxisrelevant"]" has designed a set of surveys (one for patients, one for doctors and one for other health...

In this case, it seems 'PEM' abbreviates 'Paediatric Emergency Medicine'. Also explains the bit about keeping the patient out of the emergency room in the future...

Btw, after logging in (even when you initially followed a link to the petition), you will find yourself on the generic start page of the petition site. Searching for 'Evelien Van Den Brink' will easily get you back to the petition.