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  1. O

    Associations between long-term conditions and upper gastrointestinal cancer incidence: UK Biobank, 2021, Marley et al

    Associations between long-term conditions and upper gastrointestinal cancer incidence: A prospective population-based cohort of UK Biobank participants Abstract Upper gastrointestinal cancers (oesophageal/stomach) have high mortality rates and are often diagnosed after the disease has...
    • ola_cohn
    • Thread
    • 2021 cancer ltc marley me/cfs paper pernicious anaemia prevalence uk biobank
    • Replies: 0
    • Forum: ME/CFS research
  2. O

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    Final version of this paper has now been published: https://nn.neurology.org/content/9/1/e1113
  3. O

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    I was interested to see that his sister in law has long covid. She was quoted in this story. He seems to understand the issues so clearly and speak so well to our experience that it always amazed me that he wasn't sick with this himself. I had been wondering what his connection to this was...
  4. O

    Postural orthostatic tachycardia syndrome: A respiratory disorder?, 2021, Stewart

    Abstract Postural orthostatic tachycardia syndrome (POTS) is a disorder epitomized by the story of the blind men and the elephant. Patients may see primary care internists or pediatricians due to fatigue, be referred to neurologists for “spells”, to cardiologists for evaluation of pre-syncope...
  5. O

    Management of Long-COVID Postural Orthostatic Tachycardia Syndrome With Enhanced External Counterpulsation, 2021, Varanasi

    Abstract A growing number of patients diagnosed with COVID-19 disease have been reported to have postural orthostatic tachycardia syndrome (POTS) after the acute phase. A 57-year-old female was diagnosed with COVID-19 in December 2020. As a result of her acute illness, she was hospitalized...
  6. O

    Cognition and (POTS): Participant-Identified Challenges and Strategies, and Implications for Intervention, 2021, Hollingsworth et al

    Full title: Cognition and Postural Tachycardia Syndrome (POTS): Participant-Identified Challenges and Strategies, and Implications for Intervention Abstract Postural Orthostatic Tachycardia Syndrome (POTS) is a condition that affects the autonomic nervous system and can cause both orthostatic...
  7. O

    Social position and functional somatic disorders: The DanFunD study, 2021, Signe et al

    Did they look at whether people were unemployed now, or before they got sick? Sorry, I can't see it behind the paywall.
  8. O

    Australia: News from Emerge Australia

    Emerge Australia sent out an email today with an update from the new CEO Anne Wilson who took over earlier this year from Heidi Nicholls. Some excerpts: Later this week we will be launching the start of a six-month awareness raising campaign to put ME/CFS on the map. This campaign will put...
  9. O

    Psychotherapy including CBT and other counselling - benefits and harms

    I'm so glad that Alana took the time to write out and publish that. It was one of the best pieces that I've read showing how abusive cbt can be.
  10. O

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There's a heartbreaking post on Reddit today from an nhs patient who is still receiving non-compliant (and atrocious) advice from an nhs physio in what sounds like a cfs or fatigue clinic. The post is long, but here are a couple of quotes: It felt like she was saying that I have CFS because...
  11. O

    Acceptance and Commitment Therapy for ME/CFS - Discussion thread

    I think this is a great point, and I wish there were more therapists with chronic illness. The one time a doctor forced me to go to a psychologist (Australia is still quite barbaric and fully onboard the bps train) I was able to find one who had experienced chronic pain and, even though it's a...
  12. O

    Acceptance and Commitment Therapy for ME/CFS - Discussion thread

    The way they muddy the waters is really insidious. How is a non expert patient meant to understand the difference between supportive and coercive therapy? Even an informed patient would often not be able to identify which was being offered until halfway through. How is someone with a chronic...
  13. O

    Acceptance and Commitment Therapy for ME/CFS - Discussion thread

    I did some ACT the second year I was sick and found it incredibly helpful. It was the book The Happiness Trap which is written so that you can do a short chapter each day, with explanations and exercises. I did it on my own with no therapist guiding me except the book. The thing I found so...
  14. O

    News from Australia

    Australian former MotoGP champion Casey Stoner gave a press conference at a recent meet with some details of his mecfs experience: https://amp.nine.com.au/article/32da344b-0fc1-40a9-9b62-faefab4a2d33 For the first time in more than three years, Australian legend Casey Stoner made an appearance...
  15. O

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    I've come across this thread a few months on and the links to the articles are broken. In case anyone else is looking for them, they can all be accessed on this page: https://mecfsskeptic.com/tag/dark-history-of-psychosomatic-medicine/
  16. O

    News from Australia

    There was a hearing in the Senate a couple of days ago about issues people face accessing dsp. Victorian senator Janet rice had a nice tweet thread raising awareness and expressing support for people with mecfs and other chronic illnesses.
  17. O

    Vasoactive Intestinal Peptide--a game-changer?

    Thanks for letting me know that @Hutan.
  18. O

    Vasoactive Intestinal Peptide--a game-changer?

    Hi Allele, I'm interested in your vip story! Do you have any updates? Cheers, Ola
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