Search results

merged https://www.ucl.ac.uk/news/2022/jul/analysis-depression-probably-not-caused-chemical-imbalance-brain-new-study I don't have the URL of the original paper but it's still interesting to read and has great implications if it's true.

That would be malingering or Factitious disorder which is not what MUS/FND/Psychosomatic are claimed to mean, however in practice some medical professionals often use FND Etc as a euphemism for malingering or hypochondria.

Do you mind me asking what are you using these supplements to treat exactly? Because if it's ME then I'd save your money if I were you.

I've experienced something similar, I'm in far less pain now that I'm very severe compared to 15 years ago when I was mild. Why? Because back then I kept ignoring my limitations, putting my self in PERI - Post Exertional Rheumatic Injury. If somebody were to use standard measures upon me such as...

I was going to correct you there to say it's not real gaslighting if they honestly disbelieve you, but when they say "We're not saying your symptoms aren't real", I think there's an element of deception that counts as gaslighting.

I don't recall why some patients hate SEID, it's far superior to CFS.

Research? You mean crypto-ableist propaganda.

Even mild sleep deprivation lowers my injury threshold and deterioration threshold and has caused many permanent deteriorations of my condition, so I think it's worth studying.

In the video you posted at about 17:43 they start promoting quack treatments such as acupuncture and CBT.

https://www.s4me.info/threads/who-hijacked-me.28199/

Not defending PACE but what do you mean by cheating? Do you mean the lowering of the recovery threshold?

Shh, you're upsetting Simon.

The last guy in the video says that ME is a real physical illness, I thought that was considered politically incorrect?

https://jnnp.bmj.com/content/83/3/248

For me to be convinced they would have to do before and after scans, before talking treatment and after talking treatment and see if there is an objective difference.

Merged thread https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(23)00493-2/fulltext So they are saying psychosomatic conditions are not taken seriously. If an ME patient said that, then they would be told they are stigmatising mental health by the likes of Max Pemberton...

I can't remember where it was from but there was a GET study that showed no objective improvement using actigraphy, it was the trial that put the PACE researchers off from using objective outcomes.

Agreed and I'll add that how real a patient's symptoms are treated is a spectrum too with psychologized physical symptoms scoring the lowest but the BPS Brigade try to portray us as irrational for not wanting to associate our illness with anything psychological. They can cry "Stigmatizing mental...

Who do you think are responsible for the hijacking of ME and re-branding it as CFS?

McEvedy & Beard had already spread their crypto-ablest propaganda by 1970, Charles Shepherd who trained in the 1970s says that he was taught that ME was hysteria.