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    The Concept of ME/CFS, 2024, Edwards

    I don't understand why, it's far superior to CFS.
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    Best articles on ME history

    Don't forgot to mention that ME was hijacked twice (3 times if you count the so far unsuccessful redefining of ME as PEM). In 1970 ME was redefined as hysteria then in the late 1980s it was rebranded CFS by the BPS brigade with the focus upon fatigue rather than what Melvin Ramsay originally...
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    Autism and ME/CFS

    I had unrefreshing sleep, brain fog, my eyes would sting from lack of sleep. I became a very light sleeper, with smaller noises being enough to wake me up. I developed synaesthesia and started to feel physically hit by certain sounds. The more I was exposed to an offending sound or smell, the...
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    Autism and ME/CFS

    My Autistic Burnout was misdiagnosed as CFS. There's a lot of overlap with the sensory issues, I had both deteriorative auditory intolerance and deteriorative olfactory intolerance which got worse with sleep deprivation.
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    "The evidence for pill colour impacting placebo effects gets flimsier the more you examine it"

    I'm glad they called out Ben Goldacre upon his pseudoscientific nonsense, I wish more skeptics would rebel against him. A lot of so called skeptics blindly follow the likes of Goldacre and the power of the mind myth that he perpetuates.
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    New Video ME/CFS Scandal Explainer

    Overall a good video, I've just got a few points to make. @3:40 - Says muscle fatigueability would become known as PEM but this is not true.I believe what Melvin Ramsay originally witnessed is not the PEM that's described upon patient forums today. Ramsay never spoke of permanent damage from...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    @24:00 They keep repeating the same lie about not saying the symptoms aren't real.
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    Adrenergic dysfunction in patients with [ME/CFS] and fibromyalgia: A systematic review and meta-analysis, 2024, Hendrix, Younger et al

    Would anybody care to speculate upon why this was found? Also Jarred Younger Says ME & Fibromyalgia are different manifestations of the same illness, do we agree or disagree?
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    Trial Report Six-Week Supplementation with Creatine in ME/CFS: A Magnetic Resonance Spectroscopy, 2024, Godlewska et al

    I can't remember, it came in a big tub similar in size to a tub of protein powder, and with a similar scoop. I took it for about a month.
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    Trial Report Six-Week Supplementation with Creatine in ME/CFS: A Magnetic Resonance Spectroscopy, 2024, Godlewska et al

    I tried creatine back in 2003 when I was body building but was suffering from Autistic Burnout. It made no difference what so ever, my cognitive fatigue and brain fog were just as bad as before I took creatine. I'm not hopeful what so ever for this supplement.
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    I'm reminded of that Simon Wessely quote where he says: For as long a psychiatry exists in the public imagination as it does now, then each generation will find it necessary to discover its own ME. What he doesn't say is that the reason the names keep changing is because patients realize the...
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    UK: LBC phone in on ME 8pm, 24th August 2024

    To be fair I prefer it when they're honest rather than giving us the old "We're not saying the symptoms aren't real", at least you know where they stand upon the issue.
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    Who is Simon Wessely?

    It is due to the Goldacre Effect, when usually skeptical people hold a far lower standard of evidence for psychological explanations of physical syndromes than physical explanations. Somebody should write an MEPedia article about it.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    What were you taught about ME and Fibromyalgia?
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Theres a thread here dedicated that sort of thing. Just search Google for: S4ME "Bad ME"
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    UK lawyer for suing for medical negligence of #ME. No win no fee. Please share far and wide.

    How do they prove damage? I was wrongfully sectioned for a month, went through a horrible ordeal, and had my condition made permanently worse but when I got out, nobody would take my case because I didn't have objective proof of damage.
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    NHS England web pages on ME/CFS

    They also offer: breathing techniques I'm permanently damaged by trivial exercise, I don't need to be taught how to breath, I already figured it out when I was born.
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