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Sounds like they are blaming the patients for lack of efficacy of their treatment, something quacks like to do. When I was sectioned in 2014 they told me my severe ME was psychosis and made me exercise. After I was discharged I made a complaint because they made my ME permanently worse (I can...

Once again, no mention of exercise or exertion harming ME patients.

Modern medicine has only been around about 100 years. How can they be so arrogant as to think all diseases have been discovered making it possible to rule out physical causes? What about the 100's if not 1000's of conditions we are yet to discover? What about in a 100 years time or even a 1000...

They say a third of GP visits are due to conversion disorder (AKA somatization), even though they discourage the term psychosomatic. Where is their evidence for this? They are saying anything that's unexplained must be in the mind. This is not a rational belief, it's based on faith not evidence...

Merged thread https://www.nice.org.uk/guidance/gid-ng10091/documents/consultation-comments-and-responses-2 It's a good read if you're well enough (I've only read bits of it). I noticed that Royal United Hospitals Bath NHS Foundation Trust on page 95 said: The study seems to be this...

I didn't like that they had a section on alternative therapies even though they mentioned that they aren't proven. Also they didn't mention long term damage from exercise. I found a problem with this page...

It's great to here someone mentioning permanent damage in relation to ME as I have suffered this and become very severe. Worsening from exercise should be part of the inclusion criteria for ME.

Who needs enemies when we have charities like this speaking for us?

ME has been around since 1955 may be earlier. Fibromyalgia came about in the 80's. Where? NICE still treats ME as psychological.

It's very likely that her medical records say Chronic Fatigue Syndrome not ME. Have we ever done a poll about this? Also there's no such thing as NHS specialist treatment for ME so I find this highly misleading.

@2:12:20 He says crashes last for days. I would have preferred it if he mentioned crashes that last for months, years or even indefinitely as in my case. Specifically the lowering of the PEM threshold. On the positive side he did mention that exercise makes patients worse (in contrast to other...

May be modern thermometers are more accurate.

According to this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2379748/?page=2, the ME Association said there were 150,000 people in the UK who had ME back in 1993. Now they say 250,000 people have it. Where did the extra 100,000 come from?

Can someone tell me what psychosocial exploration is? It sounds like a scam used to dismiss patient's symptoms as minor and inconsequential (exercise can't harm you).

Didn't Charles Shepard say he was taught in the 1970's that ME was "hysterical nonsense"? I'm beginning to wonder if GPs ever took ME seriously.

7 days? I've had payback lasting over 12 years and counting. There needs to be acknowledgement of harm from exertion that lasts for years or even a lifetime.

Wrong. What about an adverse reaction to exercise and exertion? To be fair she doesn't seem to use the phrase ME but surely she's aware of the confusion? She could have mentioned somewhere that ME is a separate illness or put something in there about stricter criteria.

To add to what I said, I think inflating the figures is counter productive to advocacy. Take this example: https://www.ajourneythroughthefog.co.uk/2019/05/common-myths-about-me-cfs-debunked/ 1 to 2% is 664,400 to 1,328,800 not 250,000 so this article contradicts it's self.

The population of the UK is 66,440,000. 0.2% = 132,880. I doubt that many people have real ME, chronic fatigue may be but not ME. I suspect doctors are handing out the diagnoses based on loose criteria.

What was that Wessely said about a little less t-cells and a little more psychology?