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@29:00 I really want some peanuts now.

Remember to track patient's PEM threshold as this is a very important indicator of disability.

Exercise or exertion caused indefinite worsening in 55% of patients and also some cases of long-term worsening according to this poll: https://www.s4me.info/threads/has-exercise-or-exertion-lowered-your-pem-threshold.15055/.

ME is an intolerance of exercise & exertion not fatigue. She really should have mentioned long term PEM/payback, that's the most important thing about ME in my opinion.

Funny, my old doctor told me, "You can't be that ill, you've only got CFS" when I explained I couldn't get to his office for an appointment and needed a home visit.

Sounds too good to be true.

It doesn't define PEM. It should mention that adverse reactions to exercise in ME can be long term, even permanent.

Found this on an old USB stick: From googling I found it quoted here. It amazes me how fast Google can search the web.

Very severe bed-bound, unable to talk. How do I get on the government's vulnerable people list? Tesco are fully booked for this month. My carer (who doesn't do shopping) called Tesco and they said I needed to provide proof that I am on the list.

When will this myth end?

FND symptoms are seen as inconsequential. For example: Exercise can't harm you. That's why I think it can be a dangerous diagnosis for ME patients.

Back in 2012 I took D-Ribose along with 4 grams of vitamin C under Dr. Myhill's advice. I noticed no benefit what so ever. It's probably just a scam.

In the first video @3:10 he mentions evidence-based support. I have to take exception to this. I live near Leeds and was told (without any evidence) that my illness was somatization. I was offered a place at Leeds, after I refused... Will finish this post tomorrow as I can't type any more...

Could you elaborate on this please, what have they changed the meaning of PEM from and to?

He explained in the e-mail that it meant there was no right answer to my question. I never even bothered replying, he clearly isn't interested in having an honest debate with those who hold opposing views to his.

The reason ME patients don't want their illness viewed as psychological is that their symptoms will be viewed as inconsequential (I.E exercise can't harm you). Like it or not there are distinct concepts of physical and mental in the hearts and minds of the general public (and the medical...

I think the problem is large heterogeneity of samples, most studies use the overly broad CDC 1994 criteria or the even worse 1991 Oxford criteria. Researchers should focus on patients who suffer from an adverse reaction to exercise & exertion not idiopathic fatigue.

I had to spread out signing my name on my postal voting form over three days to avoid over doing it. I was using a ball point pen, I haven't used a fountain pen since I was 12.