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    Mental work seems to lead to sound sensitivity and poor sleep

    Do you suffer from Autism because it's associated with deteriorative sound sensitivity? I have it, it ruined my life and destroyed my health.
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    Why the BPS people think the way they do

    https://www.theguardian.com/science/2016/jan/07 - Click upon treatment wars for the below quote (There are other interesting articles there). “People who say CBT is superficial have just missed the point,” said Trudie Chalder, professor at the King’s College Institute of Psychiatry, Psychology...
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    Why the BPS people think the way they do

    If by BPS you are including the average GP, then the truth is that they don't really fully believe in the awesome power of the mind. It's just some charade they go along with because they need a way of labelling the patient as malingering, or a hypochondriac. They're taught to give patients the...
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    You Might Have Already Fallen for MAHA’s Conspiracy Theories

    Agreed. This is what pushed me to turning to Sarah Myhill over a decade ago. I took her tests then she had me popping a ton of her vitamins, minerals, and supplements, none of which led to any improvement. If my GPs & psychiatrists just believed me, treated me with respect and consideration...
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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I read that entire thread and there was not one mention of long term physical damage from neglect / disbelief of ME.
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    May be the CBD actually made the patients' Fibromyalgia pain a little worse but there was still some response bias, but the placebo group had more response bias.
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    https://www.sciencedirect.com/science/article/abs/pii/S0003496725042384?via%3Dihub Not sure why he thinks placebo worked better than CBD because there was eventual regression to mean by the time the trial had finished (no difference between active group and placebo group).
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    Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders?

    No idea why it costs so much, it was cheap to make yourself with a bit of GLB based alloy wheel cleaning fluid before they outlawed it in the UK.
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    What the concept of psychosomatic disorders really is

    Doctors don't question shoddy research because it backs up their pre-existing worldview that these patients are malingerers or somatizers who feel a bit tired sometimes like we all do after a long day at work. People tend not to question research that tells them what they want to hear. They...
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    He mentioned some brain regions including the Bilateral Insula and the Amygdala.
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    Action for ME (UK) fundraising (AfME)

    What about Invest In ME?
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    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    Just found this Reddit thread where doctors agree that Diabetes should be split up in to separate illnesses:
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    How many of those patients are then disbelieved or locked up in mental hospitals?
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    People with RA don't cause permanent damage to themselves by walking to the bathroom. RA patients are not known to medical professionals as whiney somatizers with s*** life syndrome. As far as I know they are not locked up in mental hospitals due to the belief that RA can't be deteriorative. As...
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    I think the medical profession has had enough time now to have collectively written to the World Health Organisation to give deterioraters a legitimate and accurate diagnostic label. They must have known about us for at least 70 years. The truth is that they simply don't believe us and would...
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    Worsening from pushing through beyond PEM and over your Deterioration Threshold is called a consequential progression whereas getting worse for no reason at all is called a natural progression. It's possible to experience both. Somebody needs to add these terms to MEpedia.
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    Your average GP / Specialist / Psychiatrist will think you're delusional for saying exercise causes you permanent damage. I was locked up in a mental hospital for it. Even if there are a few doctors who believe in damage, the probability of finding one is low. There is a huge gap between what...
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    Addressing The Diagnostic Void Faced By Patients With Deteriorative Symptoms

    I don't remember but my stance is that it should be cautiously treated with consideration to prevent deterioration because even if there will be a cure in the future, there's no guarantee we will find it within our life time.
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