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By which they mean very real delusion.

I have progressive Autism, part of which causes physical pain from sounds. When I explained my symptoms the rheumatologist I saw told me in a patronizing tone "That sounds like anxiety". Visiting hours in my 6 patient ward were very painful. They never gave me a quiet side room, they didn't...

They are claiming a worldwide prevalence of 30 million which seems off to me. 80 million would be 1% so 30 million is nearly 0.4%.

What planet are they living upon? Sleeping more always makes me recover quicker, losing sleep exacerbates my condition.

No mention of PEM or LTSE from exercise.

I think part of the reason is that ME is less prevalent than what most sources claim.

Full article available: https://jamanetwork.com/journals/jamapsychiatry/fullarticle/482600

This much cited (over 1600 citations) study from 1978 claims to have proven the placebo effect is real. https://pubmed.ncbi.nlm.nih.gov/80579/

Merged thread https://www.thecanary.co/opinion/2023/08/16/me-cfs-nhs-trust-clinical-psychologist/ For those of you who don't remember, this is Michael Sharpe's territory. The ME Association put out a statement from its medical adviser Dr Charles Shepherd. He said:

That comment has now been deleted. I would have liked to ask them for evidence of their claim that 1/3 of CFS is factitious or psychosomatic. Their usual excuses are appeals to authority and appeals to popularity, and perhaps a few studies where there were so few participants that no conclusion...

Can you be more specific, how was their ME portrayed?

CBT for insomnia is a joke. I'm left wondering about what tricks they used to give the illusion of success, we've seen them do it with exercise and I'm betting this is no different.

Except Fraud, he admitted to not being able to cure any of his patients.

Do you have a reference for this? I thought Ramsay said all ME was relapsing / remitting.

https://old.reddit.com/r/medicine/comments/15i7cw7/autoimmune_encephalitis/ Autoimmune encephalitis. Mentions rituximab as a treatment. @Jonathan Edwards

https://archive.org/details/39002010195692.med.yale.edu/page/2/mode/2up I've not had the chance to read this, it's an early 20th century book about neurasthenia, that I'm told describes PEM without calling it that, and gives good advice. (Not sure where else to post this)

https://old.reddit.com/r/doctorsUK/comments/15di7df/downplaying_a_patients_symptoms_based_on_gender/ Interesting thread exposes gender bias and how discrimination toward men is not more prevalent but more socially acceptable.

I've read the paper and it was ok. I liked the part about mental health law trumping people's human rights when they get sectioned. Should be PESE or LTSE - Long Term Symptom Exacerbation. To be fair there are people who treat psychiatric illness as if it's not real.

My point was also that he doesn't take the opportunity to be critical of it, he should have mentioned the lack of evidence for the concept as well as the double standard of evidence required for medical professionals to accept such a concept.

https://books.google.co.uk/books?id=Dm6Xt6pk8aQC&pg=PA244&lpg=PA244#v=onepage&q&f=false P244 Charles Shepard believes in somatization, and seems relatively uncritical of it.