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I used to work with someone who wouldn't go to the GP unless she was desperate. The first thing any healthcare professional would do, almost before saying Hello, was to ask her to step onto the scales. I was so worried about her at one point that I offered to go with her to an appointment, as...

The only anti-rheumatic I've used is sulfasalazine, which is at the milder end of the spectrum. It's used to treat psoriatic arthritis among other things. I think my ME is better since I started on it, and I've heard one other person say the same, but obviously we can't be sure. I don't have...

Oh, fabulous. "Here's your app, now sod off." Clearly they've never actually experienced chronic pain, or realised that many people with it are already very skilled at deploying management strategies.

Perhaps one of the crucial things in my case was that my employer was too small to have its own occupational therapist or specialist HR team. I used Access to Work funding to employ her, which meant that she was looking out for my welfare in the way that a company-employed OT might not have...

She doesn't say anything about the fact that one of the most important roles of an occupation therapist is making work change to accommodate the needs of the disabled person, does she. It all seems to be on the shoulders of the patient. My OT negotiated the provision of additional equipment and...

Fantastic news!

Sure, but that doesn't alter the fact that these major advances were made, astoundingly quickly.

There have been three new treatments for spinal muscle atrophy, all of which have the potential to be genuinely life changing for children born with the condition.

Lots of things, but Go [in] Balls Deep is one of them...I don't know whether this is actually what she means, but it fits the context.

Me neither. I might support it being labelled as out of date, superseded, etc, so that it isn't quoted in current work except as an example of how or why not to do something, but I suppose that's not as easy to do as it might sound. It's really important to be able to see the journey that...

I know what you mean, but I still prefer straightforward "symptoms". I'm not convinced we really understand how a lot of symptoms are generated, even those that are supposedly understood. In many cases, I suspect all "understood" means is that—for instance—a certain type of skin rash is the...

I wonder why research doesn't focus more on why and how autoimmune diseases that affect both sexes develop in XY men. You'd remove a whole plethora of assumptions and potentially some confounding factors at a stroke. It wouldn't necessarily make it any easier to get answers, but you'd think...

And me. Thought I always have it in my quad (thigh) muscles, no matter what I do or don't do. As soon as the muscle is relaxed completely, the burning starts. If I tense them to stand up, 90% of the pain goes away until I relax them again. This means sleep without painkillers is essentially...

Is this phrase itself not a good example of epistemic injustice? If it were used commonly in connection with, say, the fatigue and unwellness that some people experience long after completing their cancer treatment, I might be less suspicious. After all, those are symptoms that are medically...

I see your point entirely, but surely it's still an essential exercise if no-one actually knows. There are all sorts of environmental and cost reasons why it would be useful to know whether surgical masks really are significantly inferior in protective terms. It might even turn out that they...

Oh, that'll help no end. After all, accounting is so much easier and quicker when you do away with all that audit bother, because you can just make the numbers up.

This is an important part of it. It's a very real phenomenon, and there can be a cumulative effect. Once our brains have registered that a particular type of sound is really hard on us, they put up defences against it, which depletes our energy even faster, which makes us even more sensitive...

It sounds like an interesting possibility to rule in or out—good luck to them. :thumbsup: It'd be great to get a reasonably clear result in an ME research project, even if it's a negative that advances our knowledge of where not to look.

Thank you, that's interesting. I suppose it partly comes down to money—it doesn't sound like a particularly cheap technique, and it might be more difficult than it looks at first sight to get the timing right. No, but perhaps if you could show something odd was going on, it might provide...

It might be that it provides an additional source of feedback about your position in space, which is enough to help reduce the disorientation (which can feel like dizziness). I'm one of those people who falls over if they stand up and shut their eyes. Nothing to do with ME, I've just never...