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Specialist Treatment for Children & Young People with Fatigue Information Leaflets Energy management "When can I increase my activity levels? When you have managed 2 weeks of the same activity daily, you can start to increase by 10% a week. We will review this with you in your...

Opinion | Covid is here to stay. That means long covid is, too. https://www.washingtonpost.com/opinions/2023/09/12/long-covid-pandemic-kaine-treatment/

sorry I haven't read all posts here but an important issue that all the assessments don't seem to take into consideration (ESA and DLA I don't know about PIP) is that being able to do ordinary daily necessary activities (eg getting washed, dressed, preparing food etc) are all used as indicators...

Covid’s back, you say? As disabled and vulnerable people know all too well, it never went away: Opinion by Frances Ryan Covid’s back, you say? As disabled and vulnerable people know all too well, it never went away (msn.com)

I don't know. They are still submitting accounts to the charity commission but their finances seem to have run out. Jane Colby stopped tweeting some time ago. eta: https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/3971452/charity-overview

another UK one is The Grace Charity for M.E. https://www.thegracecharityforme.org/ also The Young ME sufferers trust (TYMES trust) https://www.tymestrust.org/

L’ASFC vous offre "le petit guide du pacing" https://www.asso-sfc.org/asfc-actualites-details-478.php?zan_id=478

Institute for Neuro-Immune Medicine Clinical Research Research studies https://www.nova.edu/nim/research-studies/research-studies.html

it's a shame that other than tagging there is no other way of contacting members (eg by email), particularly those who maybe don't come on the forum very often. (I know she has retired, but @Valerie Eliot Smith might be interested).

has anyone contacted/tagged @PhysiosforME , Doctors with ME (@EducateME ), Long Covid Physios, Invest in ME (@Mike Harley )

Disability benefit bill set to be slashed as tough new rules announced (msn.com)

NHS bosses approve drug that fights arthritis linked to psoriasis that affects thousands of young people and is suffered by Kim Kardashian | Daily Mail Online

yay 5000

Wirral MP highlights findings in The Brain Charity’s report on diagnosis of neurological conditions https://www.birkenhead.news/wirral-mp-highlights-findings-in-the-brain-charitys-report-on-diagnosis-of-neurological-conditions/ eta: report here It’s all in your head report: The Brain...

The page linked to above has gone. There is this page (not sure if it was there before), seems OK. https://www.thebraincharity.org.uk/condition/chronic-fatigue-syndrome/

Their Youtube channel Institute for Neuro-Immune Medicine @NSU_INIM1.55K subscribers 69 videos Description The Institute for Neuro-Immune Medicine (INIM) is a premier research and treatment center for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Gulf War illness (GWI), and...

Gupta crowdfunding for research full details here https://guptaprogram.com/es/crowdfunding/ posting for info only not a recommendation to donate.

Debbie Abrahams Labour, Oldham East and Saddleworth To ask the Secretary of State for Health and Social Care, when his Department plans to release a delivery plan for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome; and if he will make a statement. Tweet Share Hansard source(Citation: HC...

This came up on a search the link goes to a 2009 article Using a DVD to help people with chronic fatigue syndrome learn the technique of pacing which is actually a published paper from 2009. It goes through the usual 'boom and bust''. it is pre publication of PACE and actually seems to...

Links between Serotonin Levels and Stress: Cortisol, Candida A./Mycetes, Omega 3/6 Ratio and Dysbiosis (Skatole/Indoxyl Sulfate) Role in Chronic Fatigue Syndrome (CFS) and Depression Orlandoni et al Abstract Intestinal microbiota attracts daily attention of a growing number of study which...