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Note deadline for this is this Wednesday 4th October. (The online survey asks for which country you are from.....does this mean anyone from anywhere can do it?)

You don't have to give them any ID or email address if you don't want to. Each of the sections has this: The 4 multiple choice 'optional' tick answers are the same throughout and I found myself ticking all of the first 3 at least for most answers: they then allow you up to 250 words to give...

The physio woman from the Bath clinic says that referrals are dropping and currently they are getting about 30% of what they were 12 months ago. There might several reasons for this. But also it is at odds with what the BMJ paper by doctors says; (ie that they can't get referrals for LC...

just a point on the 'misconceptions' , comments made by people section (don't know if that is what it's called on the main doc, i havent checked), word limit is 30........ridiculous.

could mods put the main link to the consultation (ie https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan) at the top of the thread or whatever so that you don't have to trawl through the posts to find it. Done

Didn't know where to put this. It's a firm of lawyers based in Brighton , Sussex Chronic Fatigue Syndrome, ME and Long COVID in the Workplace – What Should Employers Be Doing? full info Chronic Fatigue Syndrome, ME and Long COVID in the Workplace – What Should Employers Be Doing? | martin...

Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline – -part 2 Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline – -part 2 – The ME Global Chronicle (wordpress.com)

register for event at link Webinar: Long Covid Misconceptions with Dr Charles Shepherd and People with Lived Experience - The ME Association

Merged thread #millionsmissing France demo today Rendons visible l’encéphalomyélite myalgique à Rennes ! Place de la Mairie Urrugne, 30 septembre 2023 14:30, Urrugne. https://www.unidivers.fr/event/urrugne-place-de-la-mairie-2023-09-30/ https://millionsmissing.fr/

Merged thread Suffering from myalgic encephalomyelitis, Laëtitia experiences “hell” in her “centenarian body” https://time.news/suffering-from-myalgic-encephalomyelitis-laetitia-experiences-hell-in-her-centenarian-body/

this para is repeated later on? cut and paste error?

Autistic people have higher rates of chronic physical health conditions across the whole body and are more likely to have complex health needs, according to a study led by researchers at the University of Cambridge. Their findings, published in the journal Molecular Autism, have important...

Abstract Background The poorer physical health of autistic adults compared to non-autistic adults has been highlighted by several epidemiological studies. However, research has so far been limited to specific geographical areas and has primarily focused on young autistic individuals (aged 35...

agree. something more along the lines of the NZ PEM video. https://www.s4me.info/threads/post-exertional-malaise-in-me-cfs-webinar-for-health-professionals-dr-cathy-stephenson.33887/

Abstract Purpose To investigate the proportion of patients with lymphoma with persistent clinically relevant cognitive impairment, and its relation to treatment, fatigue, and psychological distress. Methods Patients with diffuse-large-B-cell-lymphoma (DLBCL), follicular-lymphoma (FL), and...

Abstract Background A growing evidence base supports the use of autologous haematopoietic stem cell transplantation (aHSCT) for treatment of relapsing-remitting multiple sclerosis (RRMS), but it has not yet been integrated into most national clinical guidelines. The objective of this study was...

Study could lead to injections that replicate brain benefits of exercise Study could lead to injections that replicate brain benefits of exercise (msn.com)

Abstract The beneficial effects of physical activity on brain ageing are well recognised, with exerkines, factors that are secreted into the circulation in response to exercise, emerging as likely mediators of this response. However, the source and identity of these exerkines remain unclear...

https://www.dailymail.co.uk/health/article-12552471/NHS-chiefs-cruel-ban-drugs-treat-chronic-pain-condition.html

Distinguishing features of Long COVID identified through immune profiling Distinguishing features of Long COVID identified through immune profiling | Nature eta: various outlets have articles Scientists edge closer to finding a biomarker for long Covid, which could lead to better tests and...