https://maldon.nub.news/news/local-news/motown-evening-at-maldon-town-hall-raises-ps830-for-me-charity-207223
NHS site definition of ME/CFS , 'extreme tiredness' again belittling seriousness of illness.
A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Abstract
Background: This study aimed to compile and analyze an assortment of research findings concerning potential therapeutic...
ABSTRACT
Background:
A relapsing and remitting illness, long COVID can be challenging and debilitating. A person living with long COVID can feel like they are getting better and recovering only to relapse again. The aim of the research was to explore how non-hospitalized middle-aged women who...
The longer the main NHS site has this
"Myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is a long-term condition with a wide range of symptoms. The most common symptom is extreme tiredness."
as its opening line, with no mention of PEM or emphasis/clarification that...
it's more this line that got me
"Jeremy Hunt has suggested people unable to work due to medical conditions or disabilities should be offered treatment so they can return to work"
begs the question why they aren't they being offered treatment anyway, and if they have, then clearly the...
dont know if this has been posted
#MEAction Scotlands response
https://www.meaction.net/2023/10/04/meaction-scotlands-response-to-my-full-reality-the-interim-delivery-plan-on-me-cfs/
Mentally ill people could be given treatment to stay in work before benefits are paid says Hunt
don't know whether to laugh or cry.
https://inews.co.uk/news/politics/mentally-ill-people-treatment-stay-work-benefits-paid-jeremy-hunt-2656199
(if you have reader view you can read the whole...
article
Men at greater risk of severe Covid - and now experts may know why
Men at greater risk of severe Covid - and now experts may know why (msn.com)
another CFS recovery group;
Australian (?) CFS Health
https://www.cfshealth.com/home
https://www.cfshealth.com/meettheteam
I found them thro this video on Youtube about GET; says the problem is people aren't doing it correctly and need to find the right baseline.
First ever diagnostic test for chronic fatigue syndrome sparks hope - Advanced Science News
https://www.advancedsciencenews.com/first-ever-diagnostic-test-for-chronic-fatigue-syndrome-sparks-hope/
we've heard that before tho, more than once.
any further feedback from BACME?
https://www.s4me.info/threads/petition-s4me-2023-cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review.35109/page-4#post-494524
Abstract
SARS-CoV-2 mRNA vaccination can entail chronic fatigue/dis-autonomy tentatively termed post-acute COVID-19 vaccination syndrome (PACVS). We explored receptor autoantibodies and interleukin-6 (IL-6) as somatic correlates of PACVS.
Blood markers determined before and six months after...
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