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  1. Sly Saint

    25% M.E. Group

    https://maldon.nub.news/news/local-news/motown-evening-at-maldon-town-hall-raises-ps830-for-me-charity-207223 NHS site definition of ME/CFS , 'extreme tiredness' again belittling seriousness of illness.
  2. Sly Saint

    A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of (ME/CFS), 2023, Keferstein

    A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Abstract Background: This study aimed to compile and analyze an assortment of research findings concerning potential therapeutic...
  3. Sly Saint

    The hidden pandemic: a qualitative study on how middle-aged women make sense of managing their long COVID symptoms, 2023, Collier & Garip

    ABSTRACT Background: A relapsing and remitting illness, long COVID can be challenging and debilitating. A person living with long COVID can feel like they are getting better and recovering only to relapse again. The aim of the research was to explore how non-hospitalized middle-aged women who...
  4. Sly Saint

    News from the USA, United States of America

    short news item on News4JAX Are you suffering from fibromyalgia or chronic fatigue? not helpful at all.
  5. Sly Saint

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    Friday October 20, 2023 UMass https://www.umass.edu/natural-sciences/events/enigma-post-viral-illnesses
  6. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    NHS Talking Therapies-Sham Monitoring http://www.cbtwatch.com/nhs-talking-therapies-sham-monitoring/
  7. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    The longer the main NHS site has this "Myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is a long-term condition with a wide range of symptoms. The most common symptom is extreme tiredness." as its opening line, with no mention of PEM or emphasis/clarification that...
  8. Sly Saint

    Covid is evolving – but the UK is not doing enough to evolve with it - Professor Sheena Cruickshank, October 2023

    https://www.theguardian.com/commentisfree/2023/oct/07/covid-19-uk-variants-testing-monitoring-drugs
  9. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    it's more this line that got me "Jeremy Hunt has suggested people unable to work due to medical conditions or disabilities should be offered treatment so they can return to work" begs the question why they aren't they being offered treatment anyway, and if they have, then clearly the...
  10. Sly Saint

    UK Government ME/CFS Delivery Plan consultation

    dont know if this has been posted #MEAction Scotlands response https://www.meaction.net/2023/10/04/meaction-scotlands-response-to-my-full-reality-the-interim-delivery-plan-on-me-cfs/
  11. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Mentally ill people could be given treatment to stay in work before benefits are paid says Hunt don't know whether to laugh or cry. https://inews.co.uk/news/politics/mentally-ill-people-treatment-stay-work-benefits-paid-jeremy-hunt-2656199 (if you have reader view you can read the whole...
  12. Sly Saint

    Inhalation of ACE2 as a therapeutic target on sex-bias differences in SARS-CoV-2 infection and variant of concern, 2023

    article Men at greater risk of severe Covid - and now experts may know why Men at greater risk of severe Covid - and now experts may know why (msn.com)
  13. Sly Saint

    Inhalation of ACE2 as a therapeutic target on sex-bias differences in SARS-CoV-2 infection and variant of concern, 2023

    Highlights • K18-hACE2 mice show sex-dependent responses to SARS-CoV-2 infection • Male and female mice display distinct proteomic signatures in SARS-CoV-2 infection • Inhalation of ACE2 reduces SARS-CoV-2 infection via decoy action and ERα modulation • Recombinant ACE2 inhibits Delta variant...
  14. Sly Saint

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    another CFS recovery group; Australian (?) CFS Health https://www.cfshealth.com/home https://www.cfshealth.com/meettheteam I found them thro this video on Youtube about GET; says the problem is people aren't doing it correctly and need to find the right baseline.
  15. Sly Saint

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    First ever diagnostic test for chronic fatigue syndrome sparks hope - Advanced Science News https://www.advancedsciencenews.com/first-ever-diagnostic-test-for-chronic-fatigue-syndrome-sparks-hope/
  16. Sly Saint

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    we've heard that before tho, more than once. any further feedback from BACME? https://www.s4me.info/threads/petition-s4me-2023-cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review.35109/page-4#post-494524
  17. Sly Saint

    Long Covid in the media and social media 2023

    I posted a lot of the content on new thread today. What is POTS? This strange disorder has doubled since the pandemic | Science for ME (s4me.info)
  18. Sly Saint

    What is POTS? This strange disorder has doubled since the pandemic

    https://www.nationalgeographic.com/premium/article/pots-exercise-harm-fatigue-long-covid
  19. Sly Saint

    Chronic Fatigue and Dis-Autonomy following COVID-19 Vaccination is Distinguished from Normal Vaccination Response by Altered Blood Markers 2023

    Abstract SARS-CoV-2 mRNA vaccination can entail chronic fatigue/dis-autonomy tentatively termed post-acute COVID-19 vaccination syndrome (PACVS). We explored receptor autoantibodies and interleukin-6 (IL-6) as somatic correlates of PACVS. Blood markers determined before and six months after...
  20. Sly Saint

    News from Australia

    Australian MP Anika Wells battles chronic illness, raises ME/CFS awareness https://thethaiger.com/world/news/555795/
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