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  1. Sly Saint

    Long COVID research risks losing momentum – we need a moonshot

    that photo was from this one "In 2022, we protested in front of the White House calling for the Biden administration to address the crisis of M.E." You mean like using an ME protest photo and not even mentioning ME? I'm all for 'solidarity' with the LC community/cause, but it should work both...
  2. Sly Saint

    A Multimodal Ayurveda and Mind–Body Therapeutic Intervention for ... Postinfectious Syndrome: A Pilot Study, 2023, Shere-Wolfe et al

    https://www.researchgate.net/publication/374769636_A_Multimodal_Ayurveda_and_Mind-Body_Therapeutic_Intervention_for_Chronic_Symptoms_Attributed_to_a_Postinfectious_Syndrome_A_Pilot_Study Abstract Objective: Evaluate feasibility and impact of a multimodal integrative therapeutic intervention in...
  3. Sly Saint

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    job ad: https://www.simplyhired.co.uk/job/gTOlMJ7X_mGAsTtrkvyb2Q6vYMCihopZq_TnYozasf9MfV4r8aA6Og
  4. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    Fatigue study uses population data https://www.odt.co.nz/the-star/fatigue-study-uses-population-data
  5. Sly Saint

    Long COVID research risks losing momentum – we need a moonshot

    except the photo caption says "Protesters outside the White House in Washington DC demand action on Long Covid", when it's a #millionsmissing protest and the banners are all about ME!
  6. Sly Saint

    Case Report: Rapid and partially persistent, improvements of anorexia nervosa and probable ME/CFS upon metreleptin treatment, 2023, Antel et al

    Case Report: Rapid and partially persistent, improvements of anorexia nervosa and probable myalgic encephalo-myelitis/chronic fatigue syndrome upon metreleptin treatment during two dosing episodes Jochen Antel1* Johannes Hebebrand1 Linda Von Piechowski2 Cordula Kiewert1 Burkhard Stüve3...
  7. Sly Saint

    The dangers lurking in Ayurveda – why the holistic therapy is doing more harm than good

    (Telegraph article from 5 months ago) The dangers lurking in Ayurveda – why the holistic therapy is doing more harm than good (msn.com)
  8. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Serco wins £350m DWP contract for disability benefits assessments Serco wins £350m DWP contract for disability benefits assessments (msn.com)
  9. Sly Saint

    Balance-ACT Study - Chalder

    I only found this info from a job ad: https://www.kcl.ac.uk/jobs/075605-acceptance-and-commitment-therapist eta: another ad, slightly different description Place as Acceptance and Dedication Therapist at KINGS COLLEGE LONDON Place as Acceptance and Dedication Therapist at KINGS COLLEGE...
  10. Sly Saint

    New developments in understanding chronic illness, Nov. 8-10 Washington DC Davis/Hanson

    Merged thread https://chronicillnessconference.com/about/
  11. Sly Saint

    Clinical partners website

    Dr Sheethal Rajashanker Consultant Psychiatrist Adult MBBS, MRCPsych Manchester (not full list) Treat? How exactly. https://www.clinical-partners.co.uk/clinicians/profiles/sheethal-rajashanker
  12. Sly Saint

    USA: News from #MEAction

    Mayo Clinic Proceedings is a journal, not the actual clinic. https://www.mayoclinicproceedings.org/ Mayo Clinic have changed but it has been a long slog; some of their 'old' misinformation is still being used elsewhere. https://www.s4me.info/threads/usa-mayo-clinic.1207/
  13. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Although the history says they updated link to Mayo I can't find it and all the above info is the same even tho the site has been updated this month. So I've no idea where they got their info from now. There is a 'feedback' button if anyone wants to comment/ ask...
  14. Sly Saint

    Physio-pedia

    I don't know if this has been updated but does seem to contain even more good info. (I haven't looked thro in detail). https://www.physio-pedia.com/Myalgic_Encephalomyelitis_or_Chronic_Fatigue_Syndrome
  15. Sly Saint

    Psychiatry: An evidence-based text (textbook)

    first published in 2009. Would be interesting to know what these chapters contain. https://www.taylorfrancis.com/books/mono/10.1201/b13480/psychiatry-evidence-based-text-bassant-puri-ian-treasaden?refId=07ff00ce-a1ee-4394-a0b9-140cd9b6e785&context=ubx
  16. Sly Saint

    Predicting Myalgic Encephalomyelitis/Chronic Fatigue Syndrome from Early Symptoms of COVID-19 Infection , 2023, Hua et al

    Abstract It is still unclear why certain individuals after viral infections continue to have severe symptoms. We investigated if predicting myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) development after contracting COVID-19 is possible by analyzing symptoms from the first two...
  17. Sly Saint

    Review A Scoping Review of Pacing for Management of [ME/CFS]: Lessons Learned for the Long COVID Pandemic, 2023, Sanal-Hayes et al

    published https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-023-04587-5
  18. Sly Saint

    News from Scandinavia

    this is posted on #millionsmissing norway; can't see the page so have no idea which particular 'event' it is referring to as it could be several! eta: found it, it's from this...
  19. Sly Saint

    MDVIP : New Study Suggests Chronic Fatigue Syndrome Is Not in Your Head; It's in Your Gut

    MDVIP sent this email to their subscribers on October 10, 2023. https://deal.town/mdvip/how-your-gut-can-cause-fatigue-PKLST4PYE
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