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Carol Monaghan Shadow SNP Spokesperson (Education), Shadow SNP Spokesperson (Science, Innovation and Technology) To ask the Secretary of State for Health and Social Care, when his Department plans to publish the cross-Government delivery plan on ME/CFS for England. Tweet Share Hansard...

Merged World ME Day asks you to learn about the broken energy system in ME/CFS http://www.voxy.co.nz/health/5/416445

Study may provide new avenues for addressing somatosensory symptoms of long COVID https://www.news-medical.net/news/20230509/Study-may-provide-new-avenues-for-addressing-somatosensory-symptoms-of-long-COVID.aspx

The pain of long COVID Some people infected with SARS-CoV-2, the virus that causes COVID-19, experience a range of symptoms after the resolution of infection, such as neurological issues that include generalized pain, neuropathy, and myalgia. Serafini et al. found that non-infectious viral RNA...

Amsterdam UMC Over 7 million euros for research on severe fatigue https://www.amsterdamumc.org/en/research/news/over-7-million-euros-for-research-on-severe-fatigue-.htm

Links between ME/CFS and Long COVID Position Statement https://www.emerge.org.au/links-between-me-cfs-and-long-covid-position-statement/

I can't access Linkedin but the brief bit I can see on a search says eta: there is an email contact on the website (ME education campaign one); maybe someone could reach out?

Merged thread Post-Exertional Symptom Exacerbation (PESE) From LongCovid physio at last someone calls it out. Shame it had to come from the LC community. a lot of good useful info and links to videos etc https://longcovid.physio/post-exertional-symptom-exacerbation

full article https://www.biospace.com/article/opinion-hope-on-the-horizon-for-sjogren-s-syndrome/

Moved post Shocking truth about Chronic Fatigue Syndrome Claims for Gulf War Veterans very short video on YOUtube. Comments seem to be open. maybe someone should point out that it might be helpful to their clients/audience if they stopped calling it 'chronic fatigue' and instead used ME/CFS.

medical education, NHS The NHS must provide mandatory training on ME/CFS – our submission to the APPG 3rd May 2023 Katie Johnstone

I have set up a thread on this org here: https://www.s4me.info/threads/me-cfs-medical-education-campaign-promoting-high-quality-up-to-date-evidence-based-medical-education-on-myalgic-encephalomyelitis-chronic-fatigue.33222/

Have set this up in its own thread because although it initially seemed to be on US it is UK based. https://mecfs-med-ed.org/about-us/

Long COVID Treatment Research Is Stuck in a Frustrating Catch-22 full article https://slate.com/technology/2023/05/long-covid-treatments-where-research-recover.html More discussion of RECOVER here...

KCL IoPPN (Institute of Psychiatry, Psychology and Neuroscience)

Functional Neurologic Disorders DOI: 10.1891/9780826184498.0026 Authors Revivo, Gadi A. | Amstutz, Diane K. Abstract Functional somatic symptom disorder is an umbrella term that includes functional symptoms that occur across multiple body systems and involve disturbances in neurophysiologic...

https://www.science.org/content/article/twist-fate-what-happens-when-top-parkinson-s-researcher-gets-disease

Join the #Millionsmissing Press conference May 12 @ 2:00 pm – 3:00 pm America/Washington, DC Washington, DC – We will hold a press conference this Friday, May 12th on the National Mall in front of a massive installation of 500 cots to represent the millions of people missing from their lives...