The book is also included on the Reading Well book list for Mental health as well as
there is also this book
Katharine Rimes and Trudie Chalder (2015). Overcoming Chronic fatigue in young people: A cognitive behavioural self-help guide.
which is recommended reading by various children CF...
still recommended by:
Royal Free
https://www.royalfree.nhs.uk/services/fatigue-service
South Tees NHS
https://www.southtees.nhs.uk/services/infectious-diseases/chronic-fatigue-syndrome-me/patient-resources/
approved iapt reading...
and this
given the changes in the guidelines this book should not be officially sanctioned reading by the health service.
eta: it also perpetuates the ME/CFS = chronic fatigue issue.
I've changed the link from Amazon (which just turned into a general link for Amazon rather than the actual link to the book reviews).
Google books (the 'new link' makes quite a big chunk of the beginning of the book available to read.)
Basically its the usual 'boom and bust'/deconditioning...
https://reading-well.org.uk/
this was the list of books for LTC in 2020
https://tra-resources.s3.amazonaws.com/uploads/entries/document/2311/RWLTC_booklist_overview.pdf
which included Chalder and Burgess' book
"Overcoming Chronic Fatigue"
and advertises itself as
A Books on Prescription...
Merged thread
Ministers must address the inequalities experienced by those living with ME: - Carol Monaghan
https://www.politics.co.uk/mp-comment/2023/11/02/carol-monaghan-without-delay-ministers-must-address-the-inequalities-experienced-by-those-living-with-me/
Abstract
Background
Reduced preload and thoracic blood volume accompany postural tachycardia syndrome (POTS). Head-down tilt (HDT) increases both preload and intrathoracic blood volume. The objective of this study was to assess the safety and efficacy of HDT in POTS in acute settings.
Methods...
Dr. Yakeen Hafouda MBBCh
Supervised by Dr. Hans-Peter Kubis
School of Sport, Health and Exercise Sciences
Bangor University
https://research.bangor.ac.uk/portal/files/66884395/2023HafoudaMRes.pdf
most of this thesis appears to have been 'lifted' from this paper...
Abstract
There have been hundreds of millions of cases of coronavirus disease 2019 (COVID-19), which is caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). With the growing population of recovered patients, it is crucial to understand the long-term consequences of the...
Op-ed: Improving long COVID treatment by learning from the past
https://www.hsph.harvard.edu/news/hsph-in-the-news/op-ed-improving-long-covid-treatment-by-learning-from-the-past/
Background: Post-Exertional Malaise (PEM) is considered a hallmark characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This may also apply to subgroups of patients with long COVID induced ME/CFS. However, it is uncertain to what extent PEM is acknowledged in routine...
How can data management tools help us discover new treatments for a chronic disease?
https://futurumcareers.com/how-can-data-management-tools-help-us-discover-new-treatments-for-a-chronic-disease
PaxMedica Acquires Suramin Research Assets from Rediscovery Life Sciences to Accelerate NDA Submission for PAX-101
PaxMedica Acquires Suramin Research Assets from Rediscovery Life Sciences to Accelerate NDA Submission for PAX-101 | Morningstar
Long COVID patients aim to educate doctors about their disease
Patients and patient advocates in New Hampshire will bring together experts from around the country at a symposium at Dartmouth in November
Long COVID patients aim to educate doctors about their disease - The Boston Globe
Abstract
Background
Almost twenty percent of adults with COVID-19 develop Long COVID, leading to prolonged symptoms and disability. Understanding the supportive needs of people with Long COVID is vital to enacting effective models of care and policies.
Design/methods
This qualitative sub-study...
I've only skimmed through the info on this website.
The only reference to PEM comes a bit later on this page
but the link doesn't appear to work (404).(?)
https://ctmuhb.nhs.wales/services/primary-fatigue-service/fatigue/
still on their website
site info is from 2015 and says due to be updated 2018........
https://www.rcpsych.ac.uk/mental-health/parents-and-young-people/information-for-parents-and-carers/chronic-fatigue-syndrome-for-parents
@adambeyoncelowe
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