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  1. Sly Saint

    Long-term effectiveness of a [CBT] in the management of fatigue in patients with relapsing remitting multiple sclerosis, 2023, Gay et al.

    Long-term effectiveness of a cognitive behavioural therapy (CBT) in the management of fatigue in patients with relapsing remitting multiple sclerosis (RRMS): a multicentre, randomised, open-label, controlled trial versus standard care Abstract Background Fatigue is a disabling symptom of...
  2. Sly Saint

    UK: Finlay is Wakeboarding for ME

    Raising money for MERUK (part of Walk for ME initiative) https://www.justgiving.com/fundraising/finlaywakeboardingforme
  3. Sly Saint

    A synthetic data generation system for myalgic encephalomyelitis/chronic fatigue syndrome questionnaires 2023,Lacasa et al

    Abstract Artificial intelligence or machine-learning-based models have proven useful for better understanding various diseases in all areas of health science. Myalgic Encephalomyelitis or chronic fatigue syndrome (ME/CFS) lacks objective diagnostic tests. Some validated questionnaires are used...
  4. Sly Saint

    Artificial intelligence in medicine and science

    Documentary not on AI in medicine but AI in general; very disturbing. iHuman https://www.bbc.co.uk/iplayer/episode/m001q1zl/storyville-ihuman
  5. Sly Saint

    Another example of claim of a 'cure' - Reverse Therapy and Mickel Therapy

    Elgin GP tackles waiting times with online practice By In Partnership with Mickel Health Remote Private GP Service https://www.pressandjournal.co.uk/fp/lifestyle/health-and-wellbeing/6093796/elgin-gp-tackles-waiting-times-with-online-practice/
  6. Sly Saint

    UK: University College London hospitals (NHS)

    job ad Highly Specialist Occupational Therapist Employer University College London Hospitals NHS Foundation Trust https://healthjobs.bmj.com/job/197436/highly-specialist-occupational-therapist/
  7. Sly Saint

    Guidance to best tools and practices for systematic reviews, 2023

    Article in the Journal of Pediatric Rehabilitation Medicine is a first step towards combating a flawed system https://www.iospress.com/news/important-guidelines-proposed-to-make-systematic-reviews-more-trustworthy
  8. Sly Saint

    Guidance to best tools and practices for systematic reviews, 2023

    Abstract Data continue to accumulate indicating that many systematic reviews are methodologically flawed, biased, redundant, or uninformative. Some improvements have occurred in recent years based on empirical methods research and standardization of appraisal tools; however, many authors do not...
  9. Sly Saint

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    eta: nice to see a bit of accurate reporting in the short video here (transcript is also available). https://medicaldialogues.in/mdtv/obstetrics-gynaecology/videos/more-severe-cases-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-in-women-shows-study-116329
  10. Sly Saint

    CBT for Tinnitus

    This is the Cochrane database systematic review (as ref above) Cognitive behavioural therapy for tinnitus Thomas Fuller 1 2 3, Rilana Cima 1 2, Berthold Langguth 4, Birgit Mazurek 5, Johan Ws Vlaeyen 6, Derek J Hoare 7 Authors' conclusions: CBT may be effective in reducing the negative impact...
  11. Sly Saint

    CBT for Tinnitus

    I found this site tinnitus.org.uk which reviews treatments for tinnitus. One of the only recommended treatments is CBT for which it says: Cognitive Behavioural Therapy (CBT) - Tinnitus UK there is a link to the full information sheet on CBT for tinnitus (pdf) In it it cites the following...
  12. Sly Saint

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Independent: Clinics ‘cash in’ by wrongly diagnosing disease Justin Bieber suffers from (Lyme) https://www.independent.co.uk/news/uk/home-news/bieber-bella-hadid-lyme-disease-symptoms-b2400985.html
  13. Sly Saint

    News from Republic of Ireland

    ME Advocates Ireland (MEAI)'s Position on Label (name) and Diagnostic Criteria (case definition) http://meadvocatesireland.blogspot.com/
  14. Sly Saint

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Women More Likely to Suffer From Chronic Fatigue: Study Geneticists searching for the cause of the commonly described illness chronic fatigue say studies so far show women are most likely to be affected. With the results of over 17,000 people, it’s the first large-scale research into the...
  15. Sly Saint

    Unravelling the influence of affective stimulation on functional neurological symptoms: A pilot experiment examining potential mechanisms 2023, Pick

    Edwards, Chalder et al Abstract Background: Differences in affective processing have previously been shown in functional neurological disorder (FND); however, the mechanistic relevance is uncertain. We tested the hypotheses that highly arousing affective stimulation would result in elevated...
  16. Sly Saint

    USA: Arthritis Foundation: Understanding Chronic Fatigue Syndrome

    a bit muddled. not quite right; and PEM is main symptom of ME not predominant symptom of LC. ?? https://www.arthritis.org/diseases/chronic-fatigue-syndrome
  17. Sly Saint

    USA: John Hopkins Medicine: Chronic fatigue syndrome

    https://www.hopkinsmedicine.org/health/conditions-and-diseases/chronic-fatigue-syndrome
  18. Sly Saint

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Merged thread Fermanagh mum sheds a light on impact of her ME diagnosis https://www.impartialreporter.com/news/23743986.fermanagh-mum-sheds-light-impact-diagnosis/
  19. Sly Saint

    Well-known, famous people with ME/CFS (public thread)

    Former international runner taking on first half marathon since ME diagnosis https://www.southwalesargus.co.uk/sport/23746035.megan-bowen-taking-cardiff-half-marathon-nspcc/ doesn't say when she was diagnosed
  20. Sly Saint

    Long Covid in the media and social media 2023

    suggest she has a look at s4me, and does a title search on biopsychosocial. plenty to choose from.
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