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Great video @Keela Too . I made the same mask , but due to lack of materials I made a small pocket for the nose piece on the inner lining ( my nose piece was a couple of bits of florist wire encased in electrical tape and I don't know how well that would fare at 60 degrees in the wash). I...

High staph aureus in GI map test last year. Have had no further testing. ( a few high and low markers including C Diff ) Practitioner advised that she sees high staph aureus commonly with clients with anxiety/ autism.

NHS Lothian had a representative at a seminar in Edinburgh a few years ago who did not condemn GET as " some people improved ". The same response ( same words) as in the Scottish Government letter re GET and COVID19. It is this that is the nub of the problem. If this was a pharmaceutical the...

From Twitter tonight. It is very much a case of be careful what you wish for. Seems to be GET through the back door via " activity management". Sleep hygiene us also a big issue. The failure to understand what is proposed, and how this affects pwME seems to be endemic. There is a real lack.of...

https://www.nytimes.com/2020/07/15/world/europe/scotland-greece-bike-ride-student.html?te=1&nl=coronavirus-briefing&emc=edit_cb_20200715

I had thought part of the reason for the Nightingale hospitals being underutilised was that hospitals were to send their own staff ? Would have been ideal facilities to discharge the elderly to instead of care homes

Extremely concerning

If organ damage is insidious to the first infection ( no matter the degree) I don't find it difficult to speculate that a second infection will be a worse experience

Moved from the Coronavirus spread and control thread. Good video.

Great news that your daughter has improved on some measure. I hope her improvements continue and daily life starts to show changes for the better. You have just illustrated the complexity of the condition . One test result , but seemingly little actual difference. CPET is an indicator based on...

Thanks @Midnattsol . Given her experience and complete lack of alternatives for severely affected my aunt is " stuck". She can't do phone/ screens much at all , and access to those knowledgable is difficult - not many practitioners here. Having seen dietician input locally for other family...

I would like to feel optimistic, however making the distinction may also enable the professional.investment in GET to continue and the status quo to prevail.

Mmmm

Thanks @Arnie Pye , I will delve into these. I suspect the potassium issue may be at the heart of it as she seems to have been deficient most of her adult life but unable to supplement. I did initially think that she may not have been able to tolerate methylated b12 , though she cant remember...

Yes, I was thinking of functional deficiency. I know one pwME in her early 20s who has had ME since 9, suffered horrendously in paediatrics and had neurological issues such as ataxia which were not fully explored by neurology, I suspect due to the CFS label. With CFS diagnosis she has been...

Sorry I have not read the study, but I would have thought that if high B12 was being looked at then homocysteine levels would have been checked and potentially mthfr/ mtr/ mtrr expression ? Edit spelling

Excellent article, well worth a read . https://disabilityarts.online/magazine/opinion/i-am-protecting-myself-but-i-dont-feel-protected/

Morning coffee break has found this on twitter. As a relative newbie things always surprise me - has this not been done before?