Search results

  1. A

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

  2. A

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Very interesting paper linked to this tweet
  3. A

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I would prefer a decent job with the " benefits" that comes from this. Not to exist in a stigmatised minority, fighting for enough to survive on , and having to counter a narrative of disbelief. Rather than " wife swap" , perhaps we should have " shrink/ therapist/ medic swap, with the...
  4. A

    Coronavirus - worldwide spread and control

    What a complete shitshow. Competence and confidence zilch . Thread worth a read.
  5. A

    COVID-19 is viewed as severe as Tumor and HIV; Perceptions towards Covid- 19 (includes CFS comparison), 2020, Menebo - preprint

    It would be good to have someone comment though. Nancy Klimas ?
  6. A

    Brand new here, hashimoto, poly cystic ovary syndrome and ME

    Welcome to the forum @Aquarian1 . The clustering of conditions does seem to be a " thing" in chronic illness- I hope that engaging here will help us all gain a better understanding. I hope that you find friendship, solace and stimulation in equal measure.
  7. A

    Peter White (ed.) 2005, Biopsychosocial Medicine: An integrated approach to understanding illness

    This x 100.
  8. A

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    To me this should be an inherent part of their remit. If not challenged via bodies which purport to support and represent the patient group then the narrative simply continues and the endless loop goes on with revisionist name changes. If after all these years they do not have persons who can...
  9. A

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    This is where critical analysis and statements from charities is needed. It is not difficult when faced with studies this bad, but it does not seem to happen. I would love to be proved wrong on this occasion especially.
  10. A

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    This
  11. A

    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Lower blood oxygen in PEM is a feature here. Given that it's not an automatic thing to look at it would be interesting to see if this is unusual or not .
  12. A

    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Don't be silly Caroline. If you can't get referrals for comorbid symptoms because that would encourage unhelpful beliefs, why on earth would you be given something to objectively measure said symptoms ?
  13. A

    ME Epidemiology - prevalence and peak ages of onset

    yes, I would agree with remission v recovered- an area that needs some serious research too as there are numerous anecdotes of teenagers " recovering" only to become ill again in later life - it may be valuable to unpick what instigated recurrance - viral/ environmental/etc as it may hold clues...
  14. A

    ME Epidemiology - prevalence and peak ages of onset

    I would guard against prevalence rates being uniformly distributed throughout the population. Given that we know certain age ranges have spikes, it may be that these cohorts have greater incidence. Discounting Crawley et al rates of c 2-2.5 % due to general lack of discrimination in diagnosis...
  15. A

    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Alternative universe
  16. A

    The biology of coronavirus COVID-19 - including research and treatments

    Interesting research re role of misfolded proteins https://phys.org/news/2020-08-protein-sars-cov-rapidly-cells.amp?__twitter_impression=true
  17. A

    New Video: The PACE trial - Politics

    Simply brilliant again .
  18. A

    UK - NHS England online tool and clinics for long Covid.

    :banghead::banghead::banghead:
  19. A

    Exercise alters brain activation in Gulf War Illness and ME/CFS. Washington et al. 2020

    mmm - there is a therapy based on this i think - is this product placement?
  20. A

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    And this gets published ....
Back
Top Bottom