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    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    There ia new variant. How deadly it usxremains to be seen .
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    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), 2022, Scheibenbogen et al

    There is a member of ME Action Scotland currently in remission after fecal transplant.
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    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), 2022, Scheibenbogen et al

    My daughter's gut microbiome has been a real issue. She had intolerances as a child which manifested as a skin condition but which resolved through diet. These were/ are dose dependent. H Pylori after onset. Just tested positive for SIBO. Can't do dairy. 52 week lead in for...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Economist take on ETA Carson and FND feature towards end . <iframe title="Embed Player" width="100%" height="188px" src="https://embed.acast.com/e421d786-ec36-4148-aa99-7a3b2928a779/38bc104a-b958-4f47-b89e-34806b94e160" scrolling="no" frameBorder="0"...
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    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    Edinburgh is also the academic home of FND. Edinburgh is on some famous BPS CVs. Current staff https://www.ed.ac.uk/ppls/psychology/people/academic-staff
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    Covid-19 vaccines and vaccinations

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    Functional Neurological Disorders - discussion thread

    That's how I read it too
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

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    Functional Neurological Disorders - discussion thread

    There have been suggestions that sexism was a significant issue in MS prior to scans. Previously you were a hysterical woman.I think Unrest touched on this . In literature the uptick in female diagnosis is noted post scanning with suggestions of epigenetic triggers, vitD levels during female...
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    Long COVID risk - a signal to address sex hormones and women's health, 2021, Stuart Stewart et al

    I don't doubt hormones could play a role but it would be good to actually have some research. Purely anecdotal and correlations. Those I know who had significant side effects to vaccination were all on HRT in my age group. In my daughter's age group those on long term contraception ( 3...
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    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    indeed
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    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    I think this type of inetrevention has had / does have an ongoing trial in australia and it does seem to make a significant difference for some. My memory may be dodgy? @Penelope McMillan There is a private facebook group started by one of Dr Myhill's patients who has gone from bedbound to...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This may not be the original context but it seems at home here
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    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    Perhaps info is needed to make a case for a trial ?
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    EBV, Glandular fever (infectious mononucleosis)

    Serology is not usually done here. We simply have a positive for glandular fever. Whether its EBV or CMV is not differentiated.
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    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    All those damned Celtic genes
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    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Thank you @Kitty
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    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    thanks @Arnie Pye I've been digging this morning and it dosn't look good - one of the side effects is a tightening of bladder muscles ( i suspect this is why it is used for bladder issues/ stress incontinence) - I can only supose that the GP is a bit confused as the issue is the opposite.
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    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Duloxetine is one of the pain relief options open to PwME. Mixed experiences but it does work for some ( MEA have a leaflet on it). It's also used for bladder issues. Gp has suggested it gor my daughter as the muscle tightness she has affects bladder and currently there is no way she could...
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