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    Is Long Covid a type of ME/CFS?

    From Twitter - seems like the feel recovered but not recovered is a thing too... LC may be more of an issue than most realise
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    droopy mouth ?

    I hope it goes away for you soon .
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    droopy mouth ?

    Thank you -we did manage to get an MMA test last year ( bloods in August and reported in December) which was not clinically indicative (midrange). She had high levels of B12 ( 1497) in blood last March though not supplementing other than a multi vit powder at 1/4 dose so GP was persuaded to...
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    droopy mouth ?

    Thanks for the quick replies . I raised this with GP in telephone consult yesterday - not a flicker of response. There is an awful lot of other things going on which may be overwhelming her. I will collate some info for GP and widen enquiries. Bells Palsy did pass through my mind.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    From the stakeholder questionnaire - zoom meeting next week for discussion with Blake Stevenson who have the Scottish Government commission for engagement Qiote esasy to respond as other than 1 speciliast nurse we have no " experts". Scottish Good Practice Guide is pretty much out nof date...
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    #MEAction Scotland News

    Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion From the stakeholder questionnaire - zoom meeting next week for discussion with Blake Stevenson who have the Scottish Government commission for engagement Qiote esasy to respond as other than 1...
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    droopy mouth ?

    My daughter has developed a droopy mouth on the left hand side when tired - basically it looks as though she's had a stroke with no control and she drools which is pretty distressing for her. Brain fog is at a new level of " is this my hand and what is my hand" and seems to be very similar to...
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    GERD, acid reflux, heartburn and hiatus hernia

    Methane seems to be related more to constipation and the methanogenic bacteria may have a more direct impact on the MMC process- slowing down transit. The SIBO test we did was a 3 hour one and checked for both. The 3 hours should allow the lactulose solution transit the full length of the small...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    And in UK that's a huge number too....
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    Covid-19 vaccines and vaccinations

    Yes. It seems to be quite common in 25 - 35s As is breakthrough bleeding As is cycles being longer/ shorter than normal for up to 6 months (so far) ETA this is my eldest daughter's work and friend age group and this came up for discussion via a number of WhatsApp groups and work last week...
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    Effect of Mg Supplementation on Inflammatory Parameters: A Meta-Analysis of Randomized Controlled Trials, 2022, Nicola Veronese

    If there are ion channel.issues with calcium would there not be a knock on effect on magnesium as there is a direct cellular relationship ?
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    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    I have a friend who has endometriosis. When she complained of " abnormal" pain for her she was gaslit, dismissed and basically told to just smile and get on with things. She focused on her job and managed to complete a gruelling microsoft challenge and six sigma training. All the while in...
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    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    It can.take years to be diagnosed. Gaslighting is common. Further gynaecology issues are likely to be dismissed. " illness perceptions " by this point may have to be recorded in French ( sarcasm for expletive language)
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    PHD Project: Multi-stakeholder activity management for children with Chronic Fatigue, 2020 - 2024

    This supposes that illness is mild. There is precious little uk paediatric research on anything other than mild. The focus on being in school demonstrates the lack of knowledge of the illness School attendance, even supported school attendance , can quickly push into moderate and severe...
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    ME in US medical school curricula

    If that was only what it was ........
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    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    Ferritiin is an inflammation marker. Both my aunts' ferritin is high ( my ME aunt is 10 x out of normal range). Iron panels are normal
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    The biology of coronavirus COVID-19 - including research and treatments

    https://www.gov.uk/government/news/covid-19-variants-identified-in-the-uk
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    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    https://www.gov.uk/government/news/covid-19-variants-identified-in-the-uk https://www.independent.co.uk/news/health/covid-symptoms-ihu-variant-flu-b1998467.html
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