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    Benefit related deaths

    Shocking but perhaps not unexpected Check out @MrTopple’s Tweet:
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    "Yoga, Depression, & Clinical Trial Critique 101" by Hilda Bastian

    Brilliant article. Makes things easy to understand. Something like this should be on every undergraduate course .
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    Hormone Replacement Therapy (HRT) and ME

    It' s an interesting query given the association with significant hormonal changes at adolescence and pregnancy. I can' t help but think that there will be some effect, and given the idiosyncrasies of this illness there will probably be good and bad responses.
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    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    Agreed - it was due to their focus on family rights and values.
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    SMCI webinar Lisette Duarte, August 30, 2018, on children/schools

    Probably US system, but always good to compare and pick up good interventions and practise
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    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    Sounds very similar to the child with mitochondrial disease a couple of years ago , who was effectively held. It was the American christian right who instigated her release.
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    MEA Research Update: Metabolomics and ME/CFS – Dr Morten and the Oxford research centre 13th August 2018

    How soon after exercise was the analysis done - 24/48/72 hours? The delay in PEM may be of importance. Were the subjects experiencing this when tbe second bloods were done? Could the unknown metabolite be the " something in the serum ?" Lots of questions
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    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    It is subtler. Severe ME is not acknowledged in children. If you fail to recover you are simply rediagnosed. This labelling is anecdotally higher in incidences where the parent is a single mother, but not exclusively.
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    Netflix "Afflicted" - ME included

    I have not watched but i don' t think you can divorce this from the US context . This is simply a continuation of roll out and roll back on a raft of areas that determines where the social conscience sits - and by doing this the context is reframed, so that the next roll out will have a...
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    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    Where are you on this @Russell Fleming ,@Action for M.E. ,@JenB ? This is every parents' nightmare writ large. Kafka could not better play it out .
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    Chapter in The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition

    Perhaps one for Coyne ?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    I have skimmed reviewers comments from the link posted by @Dolphin- notable difference between UK and Australian reviewer. Looks like the difference between someone who knows what they are talking about and someone who dosn' t / someone who is on a defined career path/ cognitive dissonance...
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    One for @dave30th perhaps given recent Australia trip
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    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Daughter has dry eyes intermittently since reaction to high dose vit D post glandular fever and pre diagnosis. Eyes often feel gritty and " don' t hold tears" . We have not associated it with ME , probably because it' s not a noted symptom- perhaps worth a poll?
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    Scientist joins Sussex ME Society's advisory team

    The question is why publish them ?
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    Scientist joins Sussex ME Society's advisory team

    Why?
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    Measuring School Functioning in Students With Chronic Fatigue Syndrome: A Systematic Review, 2017, Tollit et al

    Nissai - they have a virtual academy which is impressive and works for many children with health/ social issues which precludes meaningful school attendance. This kind of education should of course be a matter of course in the 21st Century, as Belgium has done with BEDNET, but seems sadly...
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    BBC Radio Northampton phone-in with Charles Shepherd

    @Russell Fleming @Action for M.E. Indicates how much has to be achieved in educating GPs and medics as written by a GP. Perhaps a letter to the Northern Echo from an ME charity ( or both) to set the record straight is warranted?
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    Has anyone had homocysteine levels tested & subsequently treated and found any benefit?

    Got tested on NHS as history of heart issues in family and MTHFR , MTRR genes not good. Not a lot of knowledge re homocysteine, but like most things low and high are not ideal Daughter ' s level of 6 made sense as glutathione is low so this figures. Reference scale is weird 0-20. 0 - 4 would...
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    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Sponsered by Biocare - is there a relationship between volume of supplements and practice status ?
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