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If you are not aware of Maddie Bourlet, her father , Roger, is active on Twitter and with ME Action during Millionsmissing. He has also funded biomedical initiatives. Maddie was " treated" with GET and sleep hygiene with Bath, I believe with the consultant giving the child protection lecture on...

Perhaps staking things out for literature reviews for NICE. There will be a lot of positioning..

Pertintent and still there - perhaps wirth a retweet

There seem to have been an unexpected number of severe adverse reactions noted in Denmark after Gardisil was initially rolled out. and someone has done a bit of digging as the reporting for these seems to have been designed to screen things out which may have been attributable. I don' t know...

The Danes are reviewing HPV, more particularly Gardisil as there were some idiosyncrasies in Merck' s definition and handling of adverse reactions.

Is fizzing in muscles or is it in the " gaps" between joints. My daughter has recently been complaining of it feeling as if bees are buzzing in the gaps?

My daughter descibes this as feeling as a baby would, when it can see its hand but is learning how to control it , and she has to really concentrate to do something that is second nature for most oeople.

Congratulations @Tom Kindlon . You are simply amazing. I don t think you fully appreciate the impact and difference you make. That you have such a profile is hugely important. Please keep doing what your are doing.

Afraid i can' t help. Sadly.

But ME is being swallowed up into MUS and will be part of the mental health agenda- again! So the picture is being reinforced in mainstream...

Out of interest @ukxmrv can you say which SNP (s)on MTHFR you have? Both my aunt and daughter have MTHFR mutations ( and MTR, MTRR) . If you would feel better with PM rather than open post , feel free. If you would prefer for this to remain private i fully understand.

I think there will be avlot more over the next 18 months to feed into NICE guideline review

So a replication study?

I think you also have to keep the review of mental health act in the frame too with its review of legal requirements. The overall picture has been dussected into pieces in the hope that noone puts them together. Thinking of Bob' s experience - it is a perfect storm.

Interestingly my aunt had really bad Hep C in her youth....really bad ME now...

I follow on twitter too, but have also watched his involvement in low carb over oast 2-3 years He is one of the few who can cut through statistical bullshit and expose it for what it is - seems to be a rarer quality in current day medicine..

I think there was something in Blair' s conversion to Catholicism ,- if not already there will Wessley folliw suit. How many Hail Mary' s would it take? Apologies to any devout practising Catholics who may take this comment the wrong way

Thinking of knock on effects and expressions ( and apologies in advance for lack if acience background) Both my aunt and daughter have genetic variants of genes regulating eNOS and glutathione. Being female, I' m guessing estrogen has an impact on modulation ? Would these be knock on effects...

I think for those who cannot detox the aluminium out due to genetics, that this is a potential problem.

Yes, these could be gamechangers- for many illnesses/ conditions. We are thinking of fundraising to for a school trial. But, the benefits would seem to be limited to those mildly affected by ME. I don' t know what happens when you miss chunks of the curriculum with this - say a couple of...