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    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    I wonder if current researchers are aware of this- it is approaching 2 generations ago . Perhaps even worth sending to David Tuller for background and Dr Geraghty
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    Low temperature

    Unfortunate it' s a bit like this illness- goes against what they have been told for so long
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    Low temperature

    Link to page with video. First video near start has GGT / Ferritin info. There is also a very good vitamin D video on this website. http://www.thefatemperor.com/blog/
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    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    @Spoonseeker This rings so true. We don ' t have any experts here. Info based on Bristol protocols with not much guidance at all. The insistence of having some form of educational involvement and " resetting hpa axis in 3 days" meant that it all went downhill. Complete rest would have been my...
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    Low temperature

    High ferritin can impact liver and heart via ferritin/ GGT - first bit of video
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    Low temperature

    Unfortunately if things are within " normal ranges", GPs will not look any further. Testing is set up to look for specifics ( usually near end states), and misses associations. It seems illogical that nothing is done when repeated tests show you sliding towards one scenario - until you hit the...
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    Low temperature

    Good luck with finding a mercury thermometer. Digital ones seem to have replaced these. No doubt a H&S issue
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    David Bell about "slow sepsis" in ME

    Yes, the chart that shows the correlation.
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    Researcher Interactions Video: Science for ME Q&A with Dr José G. Montoya, 16th January 2018

    I will be posting this as widely as possible Thanks to all who enabled this, and worked hard to produce the video - hopefully the first of many :)
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    David Bell about "slow sepsis" in ME

    . At around 16.50 mins in
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    David Bell about "slow sepsis" in ME

    Perhaps worth considering from OMF data presentation - last speaker. In severely affected gene expression study matched sepsis Have a sceenshot but don't ' t know how to upload it
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    Anger.

    From twitter https://kittysjones.wordpress.com/2016/11/29/rogue-company-unum-had-a-profiteering-hand-in-the-governments-work-health-and-disability-green-paper/
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    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    Meant to add that Brainwaves is quite a good series- a few subjects worth looking at on iPlayer
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    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    Homepage is link below. There is a BBC wide search function. I imagine there is a programmed timescale for updates https://www.bbc.com/scotland
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    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    It's getting to the underlying cause if someone who is clearly not functioning normally has " normal" results. HPA dysfunction is common. My daughter's standard blood tests were normal (movement within ranges,some figures skirting the edges of low/ deficient; other factors " moved"as well -...
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    Public "Integrative Personal Omics Profiles during Periods of Weight Gain and Loss", 2018, Synder et al

    Calories are not equal. The body uses different macronutrient s in different ways. Had each person been eating the same ratio of protein/ fat/ carb then this would have been more useful. Once the regulatory mechanism is broken ( ghrelin/ leptin/ insulin), you can be malnourished and still shunt...
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    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    Radio scotland have at least one such programme/ year. The two previous ones have been on "Call Kaye" which are a feature and phone in - the response is always good and really underlines the " most common uncommon disease" aspect.
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    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    I forwarded PDF copies of this to GP and paediatrician. GP is now up for looking to improve function via looking at comorbid conditions . Paediatrician would not divert from NICE guidelines ( even though we are in Scotland and there' s a wee bit mire flexibility in the wording). I don' t think...
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    Bath Fatigue Clinic - example of advice that harms child

    It seems it is easier to propose Munchausen by proxy for females, this enables the sate to intervene. If anyone knows of MBP being mooted for fathers/ make relatives, feel free to correct me. Having been back to PR to check Countrygirl' s posts it is apparent tbat i have picked the post up...
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