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Some of the deckchairs are being nailed to the deck.

What new NICE guidance ?

After a strong morning coffee i have revisited this. I think this reaction may be tied to specific groups of man made chemicals. As the vit D treatment was part of a course to treat deficiency , the prescription was changed for the next dose with no E104, and there was still a reaction, albeit...

I had an interesting conversation with ER doctor after they had consulted the on duty pharmacist. My daughter has reacted to different medicines - the reaction in both cases was attributed by the pharmacist ( and one ER doctor) to the colouring in the capsule. Both were E104, which is ( i am...

We had a rheumatology appointment last week - trying to rule out stuff as joint pain in particular is worsening. Lovely doctor but clueless. She had a physio in attendance, keen to promote an exercise programme. ......

Except certain E numbers - not used in food , but commonplace in medicine . The common side effects of many drugs ( itching, rashes, etc) not be the drug itself, but the colouring. Edit spelling

The fascinating part of the presentation was the analsis of what the enzymes did. There are probably many other genes where function overlaps and it is simply assumed that others within the " group" compensate. Given what has been found - what if they don' t What are the most common of such...

Cortisol seems important as ( as far as i can tell and i coukd be wrong) it has no " nested control" system as Barry has previously described- perhaps because it is a key player in fight or flight, and hence survival. It also impacts hundreds of other genes and processes , ( including...

Perhaps of interest to @dave30th ans @Mark Vink as it seens to repeat issues highlighted with other paediatric studies.

Action for ME have welfare officers who an help advise on this stuff - email welfare@actionforme.org.uk

Transcript of Dr. Speight interview https://www.prohealth.com/library/video-nigel-speight-me-in-children-part-2-32465

Nigel Speight used this with some success in paediatric cases . I' m sure I saw this in an interview clip.

Nina Muirhead visited one of the mum's on a parent's forum and came across as caring, supportive and determined to address the inequalities in care and lack of medical knowledge. We need more such medics.

For some reason dairy prompts skin reaction and a bit of gut discomfort. Mainly milk, cream , cheese. Did try ghee last year and seems to be a fise/ redponse thing

Thank you for responding as i was elsewhere. I had a friend in the late 1980s who was a heamophiliac , was affected and sadly died from from AIDS.

This is the UK. Generally it seems that if there is a cock up / scandal that we wait until either people are dead, or no longer practising ( retired) before any actions are taken. You only have to refer to recent paedophile scandals and the current very slow progress of the contaminated blood...

Thank you for your persistence. I think they are secretly hoping that you give up.

I think Newton is in Newcastle. Used to be referral for some Scots - harder to achieve these days and a long journey. I don' t know if Bansal has retired from private practice - i know of some who have done this route both in person and via Skype He is seemingly a very understanding and...

I picked up his name from one of the slides. There are very few NHS consultants for ME who would prescribe antivirals and B12 injections .

Yes, we have had low end of ferritin ( and therefore RBC parameters) , phosphate, other movement edging towards high TSH, glucose rising , but everything is normal so what' s the issue. There seems to be no thought that not everyone will be within " normal" parameters.