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@Dx Revision Watch Any comment to inform a response?

GP mentioned 2 year recovery - that prompted me to look closer.....

The video appears top be UK wide -WAMES flagging it up last year. Emily Beardall is a pharmacist and has ME, so this resource may have piggy-backed onto Scottish funding. I suspect it may have been developed under previous medical advisors - if it had oversight at all. In large organisations...

We have a number of colleges / unis offering sports science/ coaching - I will make a few calls

Action for ME have instigated and delivered a series of webinars for GPs and Health professionals; most are accessed via the Webinars for GP website - medics amongst you may be able to access these. webinars potentially offer a great form of information dissemination, and educating professionals...

There are some who have paralysis sporadically. A child the same age as my daughter had paralysis for a few days at onset, for 2 months following HPV vaccine ( these were both legs), and scarily yesterday almost total paralysis - only able to speak some words and move eyebrows for 12 hours...

My daughter has joint and muscle pain and persistent lymph node tenderness and swelling- she describes her joints as feeling as though there is too much air between the bones, and has particular issues with wrists, hips, jaw and knees. There is hypermobility, but she has described a new feeling...

I have not looked at the status of IAPT " deliverers" other than one link which was a private company set up by psychs, physios/ OTs and business managers. Nice pension scheme for former NHS personnel .

Does anyone know if the Journal of Health Psychology August issue is a special issue re IAPT or just a feature article?

PEM for my daughter (16) generally kicks in 24-36 hours later and peaks at 48 hours. I don't t know if this is more a correlation to degree of illness? It' s such an idiosyncratic condition.

Uncoupling of supply and demand ? There could be a number of potential mechanisms?

@Action for M.E. it' s my understanding that this kicked off under AYME, whose remit ( and head) now are with Action for ME. It would be heartening to build on recent more critical viewpoints and reinforce the unacceptable ethics and design of this trial with a suitably worded statement. The...

Good to hear that payback has been limited - and good that the results have piqued interest of academics beyond the normal " ME" bubble.

I hope your daughter dosn' t suffer too much payback. Thus is something we could not contemplate at this point in time, but i can see the usefulness.

I did wonder if this was some form of autoantibody stuck on translocator membranes as postulated by Prof Behan in 1980s . There are a lot of interesting studies which got sidetracked after BPS hijacked agenda - which are being rediscovered- eg sticky blood. These are not new phenomena, just...

Perhaps check out how charities represent this - apart from tymes trust which proffer fatiguability, fatigue tends to be the first symptom on the list . Perhaps they could lead

My daughter played netball, trained and played competitive football ( SFA standard) and generally ran about. She had also learned to surf and whilst our waves are not decent enough, would happily spend hours body boarding in summer. As puberty kicked in she was probably slightly less active...

Replication - hence importance of Chris Ponting' s research. Outcomes during/ from this study may also drive replication necessity for other aspects. It may help give a direction for future research areas - important when proposals are invited for funding.

It is dominated by fatigue in definitions and lists of symptoms and does noone any favours. This is what has muddied the waters for so long

I wonder if he is aware that EC' s LP paper is under consideration by NICE ..