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I've got a care plan, but it predated the guidelines by a few years. And when I got it, it didn't have anything in it apart from my name, address, and date of birth, so I refused to sign it. It was at least 12 years ago, and nobody's mentioned it since. :rolleyes:

If you are going to get a bed for the sitting room, @MrMagoo, it's worth looking at the 2' 6" (small single) size used in caravans. The advantage of this is that you can get proper orthopaedic mattresses for them, and the beds aren't too wide to use as sofas if you get a deep back cushion. My...

That makes sense to someone who has it all the time due to autism. Changes in intensity are related to the number of stressors, so a sound that's uncomfortable one day will cause meltdown on another if it's compounded by visual overload or tiredness. The experience of autistic overload is hard...

It depends on the conditions and the grounds available, and every case is different. WASPI women were told we wouldn't succeed—nothing unlawful happened, laws aren't retrospectively rescinded in this kind of case, and there was unhappiness but not public outrage. However the lawyers could see an...

But you could make exactly the same argument about people think ME isn't post-viral! Nobody knows. Nobody can know, because viruses don't play fair. They hit some individuals like a brickbat yet in others cause no symptoms, so people can develop post-viral illnesses without even knowing they...

Also, masks can't fit every face. They're good, but when I was using them even the best I could buy left small gaps at two places on each side. I could adjust them to the optimum position when I went out, but as soon as I'd had to move my face to speak, there was a slight shift.

That was real, but the shortages weren't. There were several bugs, but what collapsed the prosecution's case was that Fujitsu staff were making adjustments to branch accounts without the sub-postmasters' knowledge. The money in your till will look short if someone rung up non-existent sales...

From what I've read, some GPs made people feel that treatment for other issues was effectively contingent on following their advice about ME. This is a slippery one, because if a complaint is made it's the patient's word against the doctor's. You can almost hear the get-out: "We're very sorry...

Hopefully we can put it to bed now.

It also seems to be describing differences between patient communities as "strong" compared with those between medical specialists. It therefore manages to suggest that patients are stroppy and medical specialists are reasonable. I don't even think it's intentional, but that's the message I...

It's also a bit slippery, because 'activities' really means entire existence. It's good that professionals are now using activity where they'd once have used exercise, but in a sentence like this, it still manages to convey a sense of voluntary activity. It wouldn't make anyone think that...

Simmaron Research is—there's info on their website about the pilot study they're planning. https://www.simmaronresearch.com/rapamycin-trial

As I've turned into my grandmother now, it would probably be HDMI. By which I mean USB, of course, but it's near enough.

I can just about say cholinesterase, but that's as much as I understand about it!

Yes, mine was 2.85, which I think is fairly accurate – though it's skewed a bit by a walking impairment that I don't think can be explained fully by ME alone.

What do folk think about specifying that the tool offers an indication of maximal functional capacity? I got my result by answering as if I was having a reasonable day. I usually get several of these a week, but never seven; sometimes there are none, often because something outside my control...

I wonder if there's also something in the disclosure of evidence rules. I'm not sure how this works in private prosecutions, but a public prosecution requires full disclosure on both sides. Of course people may try to game it, but there's a real risk of live cases collapsing and convictions...

Private prosecutions (those not pursued by police or law enforcement agencies) might be more common here, I'm not sure. They can be a good thing—animal and wildlife charities often have to bring them, because in some cases there's not much chance of the police acting. But there isn't the same...

Same here. I'd had it for 30 years before I even knew it existed as a concept.

It used to annoy me like crazy when I couldn't find the diaeresis on a keyboard. Now I just wish I had the energy to be annoyed!