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  1. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Currently reading about the myth of the schizophrenic mother, and thought this was an interesting read: Mistreatment of Patients' Families by Psychiatrists WILLIAM S. APPLETON Abstract Many schools of psychiatric thought implicate the patient's family in aggravating and even generating his...
  2. ME/CFS Science Blog

    Effectiveness of training in guideline-oriented BPS management of low-back pain in occupational health services, 2021, Ryynänen et al

    Effectiveness of training in guideline-oriented biopsychosocial management of low-back pain in occupational health services – a cluster randomized controlled trial by Ryynänen et al. Objective This study aimed to investigate the effectiveness of brief training in the guideline-oriented...
  3. ME/CFS Science Blog

    UK: Priority Setting Partnership for ME/CFS

    The surveys says: Does that mean people outside the UK cannot participate?
  4. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    The reasoning: "we can see what the trials cannot" doesn't make much sense to me. If doctors can see with their own eyes that the treatment works, it must be a pretty strong and obvious effect because there are so many confounding factors (age, sex, illness severity etc.) that make it...
  5. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    This one by Peter Rowe required patients to have neurally mediated hypotension. It concluded: "In our study of adults with CFS, fludrocortisone as monotherapy for NMH was no more efficacious than placebo for amelioration of symptoms." Fludrocortisone acetate to treat neurally mediated...
  6. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    Some of the treatments listed have been trialled in ME/CFS, often with negative results (caveat: lack of statistical power might also be an explanation for this). In our study of adults with CFS, fludrocortisone as monotherapy for NMH was no more efficacious than placebo for amelioration of...
  7. ME/CFS Science Blog

    Digital ME conference in Stryn, Norway April 13-14th 2021

    Thanks for the summary @Kalliope
  8. ME/CFS Science Blog

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    From the quotes, it's quite clear that the participants' boredom, lack of interest are the result of being severely fatigued/sick. They don't enjoy or look forward to doing things because they are too ill, or the activities they still can do are so limited that it leads to boredom etc. I don't...
  9. ME/CFS Science Blog

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Yes throughout the paper, the authors seem to favour I-CBT because that's the version they made and it's shorter and cheaper and at follow-up it didn't perform much worse than traditional CBT. The problem, however, is that the I-CBT intervention didn't significantly outperform the waiting list...
  10. ME/CFS Science Blog

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    I think the key word here is "waiting list control group". Patients who received treatment I-CBT were compared to patients who also wanted I-CBT but were put on a waitlist for several weeks before they could try it. Suppose a manufacturer wants to test the satisfaction with a new laptop...
  11. ME/CFS Science Blog

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    It seems like the text of a poster presentation was published? It reads: That would really surprise me. A holistic approach, taking social factors into account and a broad definition of recovery seem more like the things the researchers want the patients to say. I would guess that patients...
  12. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Thanks, just one clarification: the psychosomatic theories of diabetes were rather marginal and noninfluential as far as we can tell. We provide an overview of psychosomatic explanations and go look for them, because that's what our series of articles focuses on, but this doesn't always mean...
  13. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    New article on psychosomatic theories on diabetes This blog post looks at psychosomatic theories of diabetes, from Walter Cannon’s concept of ‘emotional glycosuria’ to the myth of the diabetic personality. We will discuss the problems with the term ‘brittle diabetes’ and the importance of...
  14. ME/CFS Science Blog

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Moved from this thread: Swiss Re: Expert Forum on secondary COVID-19 impacts Feb 2021 I sometimes try to follow Sharpe's reasoning. Perhaps he meant that Monbiot shouldn't have highlighted that long covid might result in lifelong disability because that remains uncertain at this point and it...
  15. ME/CFS Science Blog

    Prevalence of (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care, 2011, Lacerda,Nacul

    Can't remember, but it was something like that, much lower than common estimates for ME/CFS.
  16. ME/CFS Science Blog

    Prevalence of (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care, 2011, Lacerda,Nacul

    If I recall correctly, the study identified cases based on GP's records so if the GP's didn't diagnose people with ME/CFS, patients would have been overlooked. So the 0.2% is likely a low estimate.
  17. ME/CFS Science Blog

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    If only they had interviewed a patient with severe ME/CFS who tried GET/CBT only to get worse afterwards. What a different episode it would have been.
  18. ME/CFS Science Blog

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    In Belgium, the government plans to start vaccinating people younger than 65. Priority is given to a large group of people with health conditions like diabetes, heart disease, chronic kidney disease etc. This group consists of approximately 1,2-1,5 million people or 10% of the population in...
  19. ME/CFS Science Blog

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    Cool, thanks for sharing. I like this version of John Prine's Angel from Montgomery the most.
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