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ME Action just announced this study. I'm interested In what others think. I'm a bit concerned. Without a representative sample, a survey about symptom clusters and the relation with hEDS, MCAS, POTS etc. are likely to give misleading answers. There also another issue which I will try to...

I think I have this as well. After overextending cognitively (for example talking during a family gather) I can have muscle soreness in y legs the next day (even though I didn't use my legs for most of the day). I think this would be something rather easy to put to the test.

From the studies that exist, we can be pretty sure that, if there is a treatment effect, it isn't going to be a large one. So I think there's a valid argument to state that it doesn't make sense that all those studies are reporting a moderate effect because they aren't powered to detect it so...

Perhaps there is nothing wrong with our energy system but there is something else, a bodily signal that gives us terribly symptoms whenever we try to do something. As an analogy, take someone with severe back pain. He might not have an energy problem to take out the weed in his garden, but the...

You need quite a few trials in order to see if there's publication bias. This review combined all "behavioral interventions with a graded physical activity component" and said: "We found some indication of publication bias." Differential effects of behavioral interventions with a graded...

Has there ever been a paper published where the authors enthusiastically claim to have developed a new treatment approach, then conduct interviews with patients on acceptability and where the patients say: "no, thanks this isn't very useful." Not sure if papers like this one count as research...

Great news. Really hope that after the worst of the coronacrisis, the minister will also take time to improve the care of ME/CFS patients in France.

Excellent article. Great to have Jon Cullinan on our side, advocating for ME/CFS.

Yes and I think the same is true for the FINE trial as well. I agree. Even the controversial Cochrane review rated everything for GET as low to very low quality with the exception of fatigue measured with the Chalder Fatigue Scale shortly after treatment ended. EDIT: the longer follow-ups of...

Looks like an interesting study.

I understand. It's strange though because it seems to work fine for me (if I choose English as language)? What exactly happens? You click on English as language on the page below and nothing happens?

Wow, didn't expect that someone would write this.

I'm confused isn't it simply the same study? EDIT: ah ok, now I see it. The first one was published in Behaviour Research and Therapy and is called "Which behavioural and exercise interventions targeting fatigue show the most promise in multiple sclerosis? A systematic review with narrative...

Good news. It seems that the ME Action press conference was a success.

The fight of parents of autistic children against the myth of the refrigerator mother and psychogenic causation has quite a lot of similarities to the work ME/CFS advocates today. An interesting read is this paper by Bernard Rimland: “Psychogenesis Versus Biogenesis: The Issues and the...

Look forward to reading your response @Joan Crawford

So no need for people and judgement anymore?

It might look like your language is already selected but you have to press it again to go to the next screen. Maybe that is the issue.