Search results

Do you have any links to articles or suggested reading on this? Would be interesting to have an overview article of how often results in animal studies do or do not translate to trials in humans.

4,680 male twins that's a lot. If they looked for ME/CFS with a proper clinical examination this study could hold interesting information (I fear that they simply asked for chronic fatigue with some questionnaire).

In this Spanish study, the authors looked at differences between immune markers in frozen and fresh samples of ME/CFS patients. For the most tested immune markers in ME/CFS remained stable when frozen including CD57 in NK cells...

Merged post If I understand correctly, this Spanish study looked at freezing cells might cause differences in immune markers compared to fresh blood. Some of the most tested immune markers in ME/CFS remained stable when frozen, namely: CD57 in NK cells, CD8+ effector T cells, CD56 expression...

Thanks Perhaps I could simply add: ... however, quality criteria usually recommend using objective outcomes (in addition to subjective ones) as these are less prone to various biases.

Thanks Andy. I've changed it to: Turner-Stokes and Wade also write that “many patients do recover from chronic fatigue symptoms”. If this statement refers to ME/CFS, the subject of the draft guideline, then it is at odds with a systematic review on the prognosis of ME/CFS which indicates low...

EDIT: I have now submitted this as a rapid response. You can read it here: Thanks to all who made suggestions and corrections. https://www.bmj.com/content/371/bmj.m4774/rapid-responses Plan to submit the following rapid response, comments are welcome: The recent editorial by Turner-Stokes...

Looks like really positive news. EDIT: Germany is the largest and most powerful European country. If they change course and act for ME/CFS patients, other countries might follow.

Well done @Karen Kirke Great find on that supplementary table that compared Chalder Fatigue Scores versus global improvement in health

Strange that they only included 5 studies. I thought they were quite a few more: Keller et al. 2014, Lien et al. 2019, Davenport 2020, and the ones by Van Campen/Visser. @Snow Leopard

I read the article but didn't find it particularly useful.

Interestingly, the letter has also been supported by Eric Topol (350.000 Twitter followers) and Elisabeth Bik (80.000 Twitter followers) who are both quite respected in the international medical community.

Millions Missing France just published an impressive letter that was sent to various health authorities in France. The letter not only includes a long list of supporters but also more than 150 scientific references. Really hope this will cause a breakthrough in France. Thanks to all volunteers...

This thread is intended to get an overview of ME/CFS news in France.

Four of the seven studies were done by the same research team in Belgium. So it could be that maladaptive perfectionism was singled out post-hoc: researchers tested for perfectionism and when it doesn't show the results anticipated, they look for subscales that are more 'interesting'. So even...

It seems that almost everyone who uses the term medically unexplained symptoms (MUS) also wants to argue that those symptoms are either psychosomatic or a modern form of hysteria.

I understood they were doing two studies: The in-depth study on ME/CFS where recruitment seems to be temporarily halted due to the coronacrisis. A study on COVID-19 patients to see if they will develop ME/CFS I would think that recruitment for the first study will continue if the coronacrisis...

Thanks for posting Trish. Can't seem to find that part, can you elaborate?

The last part seems to be the most important one: Let's hope this leads to some concrete improvements.

Thanks for posting. This is the response to a question by Pascal Arimont, the Belgian MEP who has taken up this topic and has been most helpful. Funding for biomedical research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (europa.eu)