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  1. Michelle

    Coronavirus - worldwide spread and control

    Quick question the answer to which I may have missed: why did the CDC decide not to use the WHO test for COVID-19 that everybody else is using? If South Korea seems to be doing fine with it, why didn't we use it?
  2. Michelle

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    This. I may or may not have had ME as early as 10 years old and one of the problems I developed about then was with sequential tasking, which made algebra and up very frustrating. I would get the concepts--indeed, very much enjoyed geometry and could explain the concepts to those around...
  3. Michelle

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    I was in the middle of studying Arabic and Hebrew in graduate school and my problems with short-term memory following the surgery that triggered-full blown ME was the first symptom that something was very wrong. I've used Duolingo to keep up with my French but...uh...not very effectively. To be...
  4. Michelle

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    This. The fact that he didn't is a sort of malpractice. And with regard to the topic of this thread, the IAPT is including a lot of poorly trained therapists who are getting a lot of mixed signals about what CBT can and cannot do. Which is a recipe for a great deal of harm both physically and...
  5. Michelle

    Article: 'Is standing up for expertise a fool’s errand?' - Simon Wessely still being portrayed as the 'victim'

    Oh and I forgot to add, showing those bastards in the other medical disciplines that psychiatrists are just as "medical" and "scientific" as they are!
  6. Michelle

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    What was she wanting him to help her with? Did she go to this therapist because she was hoping he would help her tinnitus? [Note: I have tinnitus and know that it is usually idiopathic so there are no treatments and that it can be a struggle to learn to live with constant high-pitched sound.]
  7. Michelle

    Article: 'Is standing up for expertise a fool’s errand?' - Simon Wessely still being portrayed as the 'victim'

    Oh, I don't know...accumulating publications? A steady career? A knighthood? A house in West London? A plum job working for the Duchess of Cambridge? A post as head of the Royal Society of Medicine? :p
  8. Michelle

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    Depends on the CBT. Good CBT can simply be about providing you with tools to manage emotional distress. I would think advanced cancer could cause some significant emotional distress. Exactly. I had CBT for depression and found it tremendously helpful. Indeed, while I'm sure I would have...
  9. Michelle

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Test Your Strengths and Gaps in Knowledge Authors: Nancy Klimas, MD

    LOL - I got that one wrong because I got confused about it being a false statement.
  10. Michelle

    Denmark: Open letter to health politicians from Danish ME Association with impressive list of signatures

    I've seen him post in the past as part of the "CFS is not True ME" crowd. Though I'm not sure what specific information he's talking about.
  11. Michelle

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    I thought Lenny Jason had a good way to address this with the question, "if you felt better tomorrow, what would you do?" In a person with depression, he or she will likely answer, "er...I dunno." A person with ME is gonna give a laundry list of stuff we'd do if we woke up feeling better...
  12. Michelle

    National Human Genome Research Institute: Researchers discover a new auto inflammatory disease called CRIA syndrome

    @Woolie: Do you mind if I ask if you had periodic fevers? I had a sort of relapse-remit flu-like thing going on starting at menarche at 10 yrs old but surgery on my knee and ankle at 26 is what left me completely disabled. Got really sick several years ago from a DTAP jab (have avoided flu...
  13. Michelle

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    This. The worst increase in my entire symptom complex was during a week on Augmentin for SIBO that included moderate diarrhea (every 2 hours or so for a couple of days). Sleep, sensory sensitivities, prostration -- all worse, along with something new to boot: seizure-like episodes that have...
  14. Michelle

    Modification of Immunological Parameters Oxidative Stress Markers Mood Symptoms and Well-Being Status in CFS after Probiotic Intake, 2019, Venturini

    Yeah, I quit trying to read this paper when I couldn't see what the sample size was within the first few paragraphs. I couldn't figure out if it was me or just that shitty a paper. Thanks for letting me know it wasn't me. ;):rolleyes:
  15. Michelle

    Action for ME: GP home visits under threat

    In my city (Portland OR - so not in the UK) we have a practice that does only home visits. I wonder if it might be worth NHS putting together home-visits only surgeries? For many years I was on Coumadin, and I remember asking my clinic what would happen if I was too ill to make it to clinic to...
  16. Michelle

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    Yes, as a kid I got the same thing. "Growing pains" or that it was psychosomatic. Thankfully as an adult, my PCPs (aka GPs) have always taken my pain seriously. They just don't know what's causing it. Diagnoses have ranged from Fibromyalgia to Peripheral Neuropathy to hEDS to Chronic Pain...
  17. Michelle

    Nurse Labs: Impaired Physical Mobility

    While doing some research on the Interwebz on how to limit the ill-effects of being bedbound, I came across this article for nurses on a site called Nurselabs on how to approach patients who have limited mobility, particularly those who are bedridden. There were two things I found interesting...
  18. Michelle

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    Random thoughts (beyond "oh FFS" and problems others have already mentioned): Chronic pain is not the same as acute pain. And the VAS is mostly pointless with chronic pain. Helpful for triaging acute pain but by and large measure function is more important with regard to chronic pain. How...
  19. Michelle

    Mike Snyder at Stanford symposium on the potential of smartphones to better understand diseases, inc ME/CFS (Simon M blog)

    Yeah, the more I thought about @Simon M 's post, the more it made me think of all the weird data my body gives off daily. Neither me nor my doctor would know what to do with that information. Indeed that has been the conclusion of I've come to with regard to the little bit of data I have...
  20. Michelle

    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    I had frequent cold/flu from 10 years old onward -- enough so that I usually missed about 20+ days of school each year. Looking back now, I can't tell if I was getting the flu or a cold that often or was just experiencing PEM. My flu-like days were just that, flu-like. Chills, prostration...
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