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  1. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    And why wouldn't they. They clearly still have sufficient political power to brazenly pervert and bulldoze their way through every attempt to hold them accountable and restrain them. Their only concession so far has been to tweak their sales pitch a bit. I doubt that makes any practical...
  2. Sean

    The pain psychologist Rachel Zoffness expains why pain is a “biopsychosocial phenomenon“…. Ezra Klein, New York Times columnist

    No, they don't. It is crystal clear now, both post-NICE and with the emergence of Long Covid, that psychosomatics is the hill the profession has chosen to die on. Pity they are going to take down so many innocent sick people with them, and in such a cruel way. But then it was never about...
  3. Sean

    Long Covid in the media and social media 2023

    And whose fault is that?
  4. Sean

    Major study on physical activity support for Long-COVID patients launched

    When your only tool is physical activity, everything looks like deconditioning.
  5. Sean

    Long Covid in the media and social media 2023

    One could well ask when is Coyne's profession – psychology – going find a spine and put the rogue psychosomatic cult within it, that is quite clearly the root cause of all this unnecessary trouble for ME and LC patients, on a very short stout leash? How come the pros can't manage to deliver on...
  6. Sean

    Long Covid in the media and social media 2023

    I made a short submission to the current Australian parliament committee into Long Covid. Mostly just noting the parallels with ME, and asking them to learn from that experience and not make the same mistakes. Plus more masking, and indoor air filters (because few things at this stage could...
  7. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    They will generously allow us to keep the ME term as a dummy, to soothe and distract us while they work their subtle psycho-magic on the 'real' problem via the FND diagnosis. The level of arrogance, dishonesty, and cowardice that requires is breathtaking.
  8. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    This is exactly where we are headed. Yes, Mr Sean, we accept you have this thing called ME. But you also have FND. In other words, they can never be proven wrong. All of which just proves, yet again, why abandoning falsifiability is a terrible and obvious mistake.
  9. Sean

    PERCEIVE study (GET for Long Covid): Baker Heart and Diabetes Institute, Australia

    Or don't want to. There is no possible excuse left for senior researchers and clinicians not knowing about this issue.
  10. Sean

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The problem is not close mindedness on the part of critics, and never has been. The problem is the lack of good evidence about the reality and relevance of the diagnosis, and the efficacy and safety of the potentially very risky and dangerous proposed treatments, combined with the almost...
  11. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    @SNT Gatchaman The result has been the specific, molecular therapies, none of which would have come to the bedside if they had been tested on every child with a chronic wet cough. Reminds me of this: "....it is critical to realize that we cannot succeed if we use DSM categories as the “gold...
  12. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    No known neurological (i.e. physiological) cause. Which is a fundamentally different statement. It is easy to find some loose correlations, without establishing causation, weave it into a syndrome/disorder/whatever narrative, and believe it to be a real specific thing. The history of science...
  13. Sean

    Why functional neurological disorder is not feigning or malingering 2023 Edwards, Yogarajah and Stone

    Yep. It is an appalling exploitation of the desperation of sick vulnerable patients. Increasingly of the view that methodology and ethics are very closely intertwined. If your methodology stinks, your ethics probably does too.
  14. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    The whole FND concept has always been dodgy. Which is why they have to market it so hard.
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