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  1. Sean

    A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services, 2023, Melby and das Nair

    In fairness, in many situations it is going to be practically difficult to do much accommodation to these needs. For example, in most health systems there is just isn't the funds available to do home visits, and having worked in the hospital system many lifetimes ago it is hard to see how...
  2. Sean

    Any examples of flawed Dutch studies similar to the Pace Trial?

    Wiborg, et al. 2010. They are indeed arguing backwards. Their claim is that because subjective self-report fatigue was not correlated to objective actigraph measurements, therefore it must be the objective measure that is wrong or irrelevant, not the subjective measure. But if anything that...
  3. Sean

    Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis, 2023, Stelson et al.

    There are some jobs for which a diagnosis of ME or LC should make that person ineligible for the job. Hate saying that, but these conditions (and no doubt others) potentially compromise competence too much, particularly in situations where critical decisions have to made on the spot, without...
  4. Sean

    The idea that ME subtypes explain treatments only working for some—thoughts?

    I remain agnostic about it being one thing, variations on one thing, or a bunch of different things. None of those possibilities would surprise me. Still insufficient data to draw reliable conclusions.
  5. Sean

    The idea that ME subtypes explain treatments only working for some—thoughts?

    It would not surprise me if there turned out to be some sub-types of ME. There are for many diseases. It might even be the normal situation. But each disease group still has something in common. Cancers, for example, are a failure to restrain cell growth. None of which excuses simplistic...
  6. Sean

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Doubt LDN will prove particularly useful, but we need a robust trial or two to establish its potential either way.
  7. Sean

    'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments

    If the study can provide definitive answers either way then it is probably worth doing.
  8. Sean

    Long Covid in the media and social media 2023

    Nothing could possibly stigmatise mental health more than inappropriate mental health diagnoses. And here we are.
  9. Sean

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    Indeed. I have long been of the view that when we get a good handle on the problem, it is quite likely to turn out to be common and undiagnosed/misdiagnosed, particularly in its more mild forms where PEM may not be such a distinct feature.
  10. Sean

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    Not necessarily. It could have been there all along, but in a dormant or sub-clinical state, and was then kicked into high gear by some trigger.
  11. Sean

    Guardian — Health anxiety can be all-consuming. Accepting uncertainty is an important step

    ME symptoms masking the early non-specific symptoms of other diseases concerns me.
  12. Sean

    “It was almost like it’s set up for people to fail” A qualitative analysis of experiences and unmet supportive needs of people with Long COVID 2023,

    “It was almost like it’s set up for people to fail” And/or to avoid accountability if it does fail people.
  13. Sean

    Are Sexual Assaults Related to Functional Somatic Disorders? A Cross-Sectional Study 2023 Jacobsen et al

    It isn't like a substantial prodromal phase is an unknown thing. Cancers, for example, don't spring up overnight, fully formed and making their presence felt.
  14. Sean

    Long Covid in the media and social media 2023

    Once people finish coming to Fraser’s clinic they often don’t respond to follow-up queries, so it is hard to know exactly how fully they have recovered Or even if they partially 'recovered' in the first place, in any meaningful sense.
  15. Sean

    Guardian — Health anxiety can be all-consuming. Accepting uncertainty is an important step

    Mostly by shifting responsibility to the patient, and the blame when it inevitably goes wrong. It is just an excuse generating mechanism for the inevitable limits to doctors' knowledge, coupled with their cowardice in refusing to stand up against the endless cost cutting to the health service.
  16. Sean

    Long Covid in the media and social media 2023

    Goal shifting and gaslighting, par excellence.
  17. Sean

    Guardian — Health anxiety can be all-consuming. Accepting uncertainty is an important step

    Ugh, I just can't be bothered with these idiots anymore. They are selling a book. Enough said.
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