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I think it is pretty clear that just about every finding and symptom so far in The Great ME Saga are the downstream consequences of the primary pathology, often a long way downstream. Which is why there are still no consistent findings, it cannot be well defined, and there are no clear answers...

That consent form has to have been written by either an AI bot in training, or maybe a subversive performance artiste.

Why is it still being called 'chronic fatigue syndrome'? Is that a bad sign?

This one could be useful, if done well.

:emoji_popcorn::speechless: :sneaky:

Newsflash: People with life devastating untreatable stigmatised mistreated disease are unhappy and concerned about it and the serious effects on their lives. Read all about it! Tomorrow: Dog bites man, while bears shit in the woods. Next week: Humans Need Oxygen, Water, And Food! The...

Why is pacing difficult for us? - Bio-psycho-social reasons So close, and yet...

I have no idea what is causing ME, and neither does anybody else, at this stage. But I would not be surprised if it was enteroviruses. That would tie a lot together in one bow.

NICE’s rejection of graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome has been challenged by many specialists. The vast majority of whom are either ignorant of the real story (possibly wilfully so), or have a serious conflict of interest in protesting the NICE...

Yep. The negative physiological response to activity, particularly the delayed component (PEM), is the core of the disease. Until it is also at the core of research and clinical practice, the decades-long failure to come up with a realistic explanation and effective treatment will continue.

How to disappear an inconvenient disease. (I actually doubt that decline is true.)

All these conditions are believed to be associated with centrally driven mechanisms such as central sensitisation. Believed by some. All studies scored moderate to high quality on the Newcastle-Ottawa scale. There was a general trend for decreased low-frequency EEG band activity (delta, theta...

Worth repeating with emphasis.

+1

Oh, the irony.

We can do better than that. More than 80% is "very low quality", with the remainder being merely "low quality". (Can't remember the exact numbers.) Hard to get much worse than that.

Grift.

Always awkward when one of your leading proselytisers falls for the hokum that is intended for the unwary masses.

Further exclusion criteria included... non-acceptance of their CSS diagnosis or unwilling to take part in a group-based therapeutic intervention. They are not even pretending anymore, are they. How much more blatant does this corruption of methodology and ethics have to get before the rest of...

There are two forms of generic empty gel capsules you can buy. The clear one for non-enteric medications, and the opaque white ones for enteric (coated) medications. For blinding the white ones have the advantage of hiding the contents, so you can't tell what is in them. I don't know if...