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I have sometimes wondered how different the ME story could have been if the gender balance was inverted.

Yay team! :balloons::party:

This is the bit I really struggle to make sense of. There is no way Cochrane can come out of accepting lower methodological and ethical standards looking good. I find it difficult to believe that at least some of the senior members there do not grasp this. What is their end game here? Or have...

This. Replicating in this context means identifying, isolating, and maximising known biases and confounders, and then redefining them as therapeutic benefits. Which is not science. It the complete opposite: anti-science.

A significant obstacle in securing medical acknowledgement of fatigue is the lack of comprehensive and accurate biomarkers. A significant obstacle in securing medical acknowledgement of fatigue is the lack of funding for a comprehensive research program for accurate biomarkers.

The difference in outcomes are largely indistinguishable for the patient. At some point the persistent failure becomes wilful, they start choosing to not see the problem(s). We are at the stage where anybody claiming to be a qualified professional in this area cannot plead ignorance of the...

Queensland health are the worst on this in Australia (far as I know). Somebody with high level influence in that state government is a BPS fanatic. They are not even original. Predisposing, precipitating, and perpetuating. Straight from the psych playbook on ME.

Pain is also a common symptom in CFS, and fatigue in FM. A bit too arbitrary a distinction for my taste.

Their track record of bad faith, especially post-NICE & with Cochrane, is too persistent and stark and damaging for me to give them any more benefit of the doubt. They have made it abundantly clear that they think they own us, and nobody, least of all us, have any right to say otherwise. Far...

I still, after all these years, struggle with wrapping my head around the level of sheer arrogance, delusion, dishonesty, and callousness required to believe that they understand our situation and how to manage it, and have the right to force it upon us, when all the evidence clearly says...

A biopsychosocial treatment approach [27] is necessary Jeebus, they are just getting worse and worse.

intestinal barrier damage Interesting.

Unfortunately, they are. A predictable, and long predicted, consequence of removing falsification and adequate control from the methodological checklist. Open ended, untestable, blatantly inconsistent speculation becomes de rigeur, and nobody (or at least nobody who matters) in the quality...

Mind over matter is the most insidious and tenacious belief I have ever seen in humans. We desperately want to believe that we can control the world to a far greater extent than we really can. It corrupts even the most intelligent, educated, decent, and experienced of people. Nobody is immune to...

I watched it and it is pretty good, especially for somebody coming to it with no background in the field (far as I know). Didn't like that she kept referring to ME as CFS, but it's an easy mistake to make for the uninitiated, and ME was not the focus of the video, so not too worried about it...

Indeed. Any properly qualified charlatan knows it has to be a chicken suit.

Yep. Don't want to be that guy, but I have yet to see any fundamental changes in the UK for patients, at any level. Thus far it looks like nothing more than a PR job to hang onto their empires and incomes. These people really have no shame or remorse. They just don't care.

And very deliberate. They know exactly what they are doing, and how nasty and cruel it is. That is the point. Expect a flood of crocodile tears at the suffering and deaths that will result.

As the Oxford university psychologist Dorothy Bishop has written, we only know about the ones who get caught. In her view, our “relaxed attitude” to the scientific fraud epidemic is a “disaster-in-waiting”. Too late. Waaaaaay too late. The fact that it has taken so long to even start...

It is increasingly recognised that a significant proportion of patients who experience chronic inflammatory conditions, chronic pain conditions, other chronic illnesses, chronic stressful experiences such as war, as well as patients with more short-term illnesses including viral diseases, will...