Search results

I hope so. Would be nice to get rid of this chronic rhinitis.

Me neither. Me too. Got sick at 20. Meanwhile, 40 years and a completely trashed life later, with virtually no possibility left of having any of it restored, nor apparently even being allowed to live out my remaining days without the constant threat of arbitrary psycho-tyranny being visited...

Completely agree. The worst thing we could do is allow some kind of political bargain that gives the BPS club jurisdiction over some patients in return for giving it up over the rest of us. That would be unforgivable. The more things change, the more they stay the same. The BPS club are...

Huge problem here is that an infectious onset/trigger isn't necessarily obvious. Non-symptomatic Covid being a recent example. It is possible that all ME has an infectious onset/trigger. But we just don't have the technical capacity to determine that in an individual case, at this stage at...

Sounds like the usual slick nonsense of superficial modification of questionnaire response behaviour (i.e. discouraging negative responses), and distraction techniques.

Exactly. They deal with that rather critical possibility by simply not allowing it into the discussion, by rejecting both adequate controls and falsifiability.

That would be a novel approach from them. But the cynic in me says that they are just trying to rebrand the same old shit as an exciting new approach, never before tried, and clearly in need of lots of funds and influence.

functional illnesses being characterised by the fact that they are made worse by exertion. ...people with these diseases can return to a normal life with the help of pacing. Pure sophistry and brazen hijacking. Words cannot mean anything the author wants them to. You cannot just arbitrarily...

“The right people have to be there, someone who knows their stuff,” recommended Stingl. “That will be the big challenge.” I wonder if they realise just how big a challenge it might be.

Excluding the BBS, there were statistically significant improvements in all outcomes between weeks 1 and 8 and between weeks 1 and 3-month follow-up. Did any of them reach clinical significance?

Okay, he gets a little wriggle room, for now. I still bitterly resent being used as cannon fodder for other people's crusades.

Does he make equally sneering jokes about psychs and their claims and behaviour? When he starts kicking up just as hard, I will start giving him a little more wriggle room.

Effect sizes matter.

Ricky Gervais' behaviour/attitude is the epitome of the kind of bully boy privilege that excess of success and lack of experience of real suffering and injustice brings forth. You are not a daring edgy comedian confronting the world with some hard truths, Ricky. You are just an entitled...

Which, according to them, is every single disease, current and future. It is little more than a massive blatant power grab.

Well said.

Par excellence. They are just throwing everything and anything they can think of against the wall, hoping something, anything, will stick.

Yep. It is why they have to keep coming up with new labels, and endlessly repeat claims about them being new insights and understandings. It is the same crap as when I first started learning about the science of ME/CFS (or lack of it) over 35 years ago. It is now understood that FNDs’...

We identified distinct cortical areas showing a progressive increase in cortical thickness across different groups, Dose-response relationships are usually good evidence.

Almost infinitely flexible. The concept of an organic problem being variable, and the patient being able to at least partially or temporarily override it or compensate for it, has apparently has completely escaped these people. I have mild standard age-related osteoarthritis in my hands and...