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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I filed FOIs for the letter. Bristol said they didn't have it and it was based at the clinic. The clinic told me they didn't have it and it must be at Bristol. Esther obviously has a copy, but that does not appear to fall into the category of Bristol having a copy. Esther claimed she sought...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    exactly. It is the same approach taken by Archives of Disease in Childhood with the LP study. All the things were wrong, as I documented, but let's just regard them as technical violations rather than substantive.
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    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Interesting that NIPH is involved. They're not pushing for anything on the revised bad exercise review or other BPS stuff? Is Atle Freitheim involved?
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    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

    I'm trying to keep a positive attitude, but it's hard.
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    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Words like "ground-breaking," "world-first," etc are best not being tossed around like this--by scientists, press officers or the journalists who write about this stuff.
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    Australia: News from the Mason Foundation

    and would this be perceived as a "defeat" for the Lloyd and the rest of the GET/CBT ideological brigades there?
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    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    And it was only one-sided printing so there were more pieces, although it was worse for the environment.
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    Action for M.E. 2019 AGM and conference 15th October 2019

    Also...the MUS session was completely anti-MUS as a diagnostic category. I can see where the description of the session might have made it sound like somehow it was trying to explain why it might make sense to include ME in MUS but that of course was completely not the point. Joan Crawford, a...
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    Action for M.E. 2019 AGM and conference 15th October 2019

    This should not be taken as if they were trying to prove or say that it's better to have an ME specialist. That would be a misinterpretation. In the survey, they presumably asked respondents whether they got GET from from a self-styled specialist or a generalist. Given that the PACE folks always...
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    Action for M.E. 2019 AGM and conference 15th October 2019

    I said "ass," not "arse." I'm American!
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    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Anyone who comes, please come up and introduce yourself! I'm also talking in Newry, N.Ireland, on Nov 5th. But if other groups want me to come and talk locally, I'd be happy to do other events on my next trip. I am always looking for reasons to leave Trump-landia for a while.
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    BMJ Editor's Choice: "The miracle cure"

    It's hard to argue against physical activity in the broader sense when you're looking at population-level data. I mean, I assume the human species evolved to move constantly across the savannah while hunting, gathering, and escaping from predators. From what I gather, this piece by Godlee isn't...
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    Trial By Error: Kaiser Permanente Changes Course

    Ha! Very interesting. I e-mailed Steve Olson last week to do a follow-up and we've scheduled a time to talk. And then I just saw your note. So we're on the same page (or screen, I guess)...
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    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Yes, I know Jodi--she's very sharp. I haven't engaged her in this issue, but perhaps I should.
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    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Hi, Andy--I had noticed the links weren't there. Then I noticed you mentioned it. Then I added them. No glitch. With the letter, I cut-and-pasted from what was sent to Dr Godlee. So that typo was original.
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    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Hm. I added the links. I think I'll leave the typo since that's how it was sent.
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    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    You can be sure members of the NICE committee are being made aware of these comments.
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    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    You can believe this will feature prominently in upcoming blog posts and perhaps open letters.
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