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How about linking in with work done on microRNA by Prof Alain Moreau who recently presented his findings at Stanford and CMRC2018? Health Canada is likely to feel safer looking at options involving Canadian researchers already established and internationally respected in the field of ME...

Yes, I've always been a bit confused by Ros' statements, too. On the one hand she always mentions physiological underpinnings (more or less well researched) and how severe the illness can be. On the other hand she often expresses herself in a way that leaves you with an impression of all...

This still happening except that when I added my 1 star - for lack of a zero star rating! - average rating of 1 star based on 1 rating of 4 stars and 21 ratings of 1 star. So it looks like people are trying to down vote this but it just keeps going back to the single 4 star rating. Could it be...

This thread reminded me of one of Cort's blogs discussing a connection between inflammation and the placebo effect. Note that the study this is based on is specific to depression (and that I haven't read the study and have zero idea of its quality): The Promise and Limitations of...

A couple of paragraphs jumped out at me in Cort's blog: Let's hope Jarred does get that money. Finding out what's happening in our brains after exertion - and coming at it from two angles, with Maureen Hanson doing the PET replication study - would be extremely interesting. Does anybody here...

Article doesn't say much more than how nice it'll be for MUS patients on the island of Fyn to finally have their own Center to go to where they'll be understood. All very nice and caring but there's no indication whatsoever that anyone at the new center might take the biomedical side of things...

Not about ME but parallels are not hard to find. The article is a highly entertaining account of assorted “medical opinion wars” throughout the last 200 years. Less entertaining and more disconcerting: many of our current debates – the diet wars, (anti-)vaccination, even BPS versus biomedical –...

Yes! I'm with you on that one @Barry. Not only is it fascinating to follow somebody else's out-of-the-box train of thought but it's in fact necessary to stop one's own thinking from getting stuck in a rut. Also agree with the numerous skeptics here: a somewhat vague and general hypothesis by...

No food allergies. A few minor Fodmap type intolerances but these don't seem to cause any more or less tinnitus than any other foods. It's more as if the act of digesting food, no matter what, triggers the tinnitus. Maybe something to do with a change in blood flow? Pure speculation, I really...

The email I received gave no indication of how many of the 450 had the MTHFR mutation and didn't mention any publications. They have only started recruiting for the MTHFR study. The intervention itself was for 3 months if I recall correctly. I don't think there was any indication in the email of...

Excellent work @Hutan. Sadly your very reasonable suggestions go soooo far beyond what's currently offered where I live it's not funny. Yet I would like to see even more, at least for severe patients. Home/Skype visits by specialist ME staff should of course be a must. Additionally doctors...

Cort did a typically enthusiastic blog about this project recently, mainly about a small followup study coming out of it (MTHFR defect – folate metabolism) currently being recruited for...

The power of celebrity. A formerly uninterested member of my wider family has been converted by a short interview on breakfast TV. All it took was a former rugby league star talking about his experience with ME. https://www.tvnz.co.nz/shows/breakfast/episodes/s2018-e155 28/8/18, starts about...

Ticked tinnitus which started about the same time as the ME, gets worse after eating (why?) and during PEM, so likely linked in some way. Also get bouts of searing ear pain, mercifully always brief, but not sure of the cause so didn't know what to tick for that. Could be herpes since I...

Haven't tried them myself but these look rather cool. For the fashion conscious with a few spare dollars. Claim that the wool filters are easier to breathe through than other types. Ship internationally. https://www.meoair.com/

While the media predictably have jumped on the high versus low carb issue what the study actually shows (ignoring for the moment other issues such as self- and infrequently reported diets and all sorts of confounding factors) is this: low carb with lots of meat = bad low carb with lots of plant...

I don't but such a study would be extremely interesting. From lurking around a few POTS forums I get the impression that there are three groups of POTS patients with regard to exercise: 1) The first group finds exercise beneficial. They may have to do so horizontally but a brisk ride on the...

My haematologist thinks it's conceivable haemochromatosis could contribute to symptom severity in ME, like adding an extra layer of fatigue on top of the ME exhaustion. As a result he is treating me more aggressively than other patients. He doesn't see it as having a causal role. I guess even if...

Thanks @Simon M for all the intelligent blogging you did while you could. Really hope your current health downturn is a temporary set back. Take care.

Your recall is correct. It was Les Simpson. IIRC, there were a few other, small studies at the time looking into this and not finding anything. Simpson said this was because they were using different (read:wrong) testing methods. He was advocating high-dose fish and Evening Primrose oil to...