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  1. JemPD

    News from Doctors with ME

    It makes me cringe when people all over the place make these claims for ME that are not substantiated, no matter how nice they might sound and how desperate we are to be taken seriously. The fact that DwME are doing it is just unbelievably unhelpful, despite my having huge respect for some of...
  2. JemPD

    Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, 2022,Hajdarevic et al

    Can i just say how much i appreciate and respect the way you try to understand us. It just says so much about who you are not just as a doctor but as a person. I'm sure you'll say something like it's 'just being normal' but it's unusual. I mean lots of people try to imagine it, but hardly anyone...
  3. JemPD

    Using PCs versus laptops when you're mostly in or on your bed

    thats why i dont have a smart phone. I cant text it takes me about 10 minutes to write 2 words! hopeless
  4. JemPD

    Using PCs versus laptops when you're mostly in or on your bed

    So you run mobile apps on a laptop? so the ridiculous problems i have because i dont have a smartphone because of issues with my fingers, & therefore cant het a whole host of 'apps ' that would be useful but they dont make them for windows - eg the NHS app.... i could overcome with a macbook...
  5. JemPD

    Best chopping tool/food prep gadget?

    ooo passata!! they are also nice with a jar of pitted black olives & some feta. non nom :):D
  6. JemPD

    Best chopping tool/food prep gadget?

    @Jonathan Edwards i s this the one you mean? lol i dont imagine you have anything so naff as a pink handled knife but the blade/style itself? Victorinox Knife for Vegetable, Pink, Medium, 10 cm : Amazon.co.uk: Home & Kitchen
  7. JemPD

    Ken Ware - Neurophysics therapy

    it sure would! ha ha :laugh::laugh::laugh:
  8. JemPD

    Best chopping tool/food prep gadget?

    @perchance dreamer I think maybe surgeons cut like for control? when you have a small implement, you are not pressing down very hard or as repetitively to cut flesh with a scalpel, as when you are chopping a carrot. I had 2 dodgy moles removed in recent yrs & i watched the surgeon working...
  9. JemPD

    Best chopping tool/food prep gadget?

    I cant manage any prep at all these days, so its all frozen or supermarket ready prepared done in microwave. But just as an aside, frozen brussels, roasted, coated in a drizzle mix of equal amounts oil, balsamic, honey & a bit salt pepper, are delish :) Also supermarket versions of frozen...
  10. JemPD

    UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

    I think of all the places in the world i would be terrified to go, a neurorehab unit would only come second to a psych unit. I would be shocked to discover they understand anything about ME. And They would be at least, if not even more likely, to prescribe incremental increases in activity after...
  11. JemPD

    Ken Ware - Neurophysics therapy

    he of the swinging jacket... I think that's Benny Hinn isnt it? lol Benny Hill was a comedian. I dont find Hinn's shenanigans at all amusing!
  12. JemPD

    Keeping Up Appearances - How to look good while feeling ill

    @ladycatlover I also cant wear knickers below the navel/waist because of a surgery scar which is uncomfortable to touch. I wear these M&S ones which are fabulous, BUT i buy 2 sizes too big, i cant stand the elastic digging in - my weight fluctuates a lot so when i in a sz10 trouser i wear these...
  13. JemPD

    Glossy tiles in bathroom

    I think it still worth getting a few samples if you can though. things look very different depending on the space they viewed in. All tile shops should be prepared to sell one or 2 tiles to view at home
  14. JemPD

    Glossy tiles in bathroom

    I pretty much housebound too. I ordered them online from a large nationwide chain, they were delivered in 3days. And i bad quite often so i was able to see them in a bad state within a wk, but if you bad less often that would be impossible. what a bummer
  15. JemPD

    Glossy tiles in bathroom

    All floor tiles have to be slip resistant these days, so do make sure they are suitable for bathroom floor, the retailer will state this. But there are different rates of slip resistance - eg 'medium SR' or 'high SR'
  16. JemPD

    Glossy tiles in bathroom

    Yes depending on how severe you are and whether patterns ever affect you, i'd definitely wanting to take several tiles home with me to look at them, 'en masse' in the room you want them in, while you are at your worst, eg with a migraine if you get them. You dont want to discover you cant cope...
  17. JemPD

    Glossy tiles in bathroom

    just as an aside, and not to take over the thread, but if you live in a house built before around 1940, then the terracotta tiles may be laid either direct to substrate or on lime-crete rather than on concrete, which means it will be breatheable - if you put vinyl straight onto that you will get...
  18. JemPD

    Compression Garments

    I was given something similar to use to get stockings on, but its muchwider than my leg so it was more difficult for me to get the stocking onto the device, than onto my leg! i didnt have the hand strength to stretch the thing that wide, it was very irritating/frustrating trying to hold it &...
  19. JemPD

    Glossy tiles in bathroom

    I have glossy white tiles, which cause me no issue, but only on one side around the bath - so not whole room & not on the floor, and i have a regular pendant lightbulb in middle of room, with a paper lantern shade on it (so at no point can the bulb be seen unfiltered/un-diffused, so it cant...
  20. JemPD

    Advice on mask-wearing to protect against Covid-19

    Its absurd @ahimsa & it has been going on a good while. see the thread i started about it here Members only - Bizarre mask policy at dentist & vaccination centre | Science for ME (s4me.info) I have developed a tactic against the stupidity which avoids an argument that i got no energy for. I go...
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