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You made my day :) Its great that you were there Adrian, its a relief to know someone i really trust was involved & am encouraged by your assessment of things particularly of the change in tone. As you say it doesnt mean anything will come of it, but its at least a step in right direction...

really? i tried to do exactly that and it wont let me, they obviously like you better :D

The trouble is as far as i'm aware it doesnt say that gradually increasing mustn't be done...., but rather that it must not be done in 'fixed increments'

Like the BPSers do. I hope this isnt going to be another blind alley by researchers who want their theories to be correct and are not being rigorous/sceptical enough about them to really interrogate the theory/finding, rather than seeking to prove it.

but you cant. I have tried it with several other books that i have bought on amazon & it wouldnt let me do it. No possibility of leaving a star rating without leaving text

this is whats sticking in my craw. It seems suspicious to me

That is a fantastic review, and account of the situation very succinct considering how much it covers. Accessible to all too, i shall be referring people to it. Thank you so much

beds are incredibly ltd which is why its even more egregious than 'just' the harm done to the PwME. I think the problem is that your average doctor in UK does not have any idea that ME/CFS is more than feeling very tired/aches & pains & mood disturbance. This is why when people get very severe...

Yes it seems clear almost right across the board with ME/CFS clinics as well as wth LC, that they believe the reasons GET has been de-recommended are spurious.... so they believe they are actually supposed to be doing it, but not to be seen to be doing it

I know a family who were been accused of it, nothing to do with ME, but involving well defined and dx 'standard - ie well understood, illness. Turned out to be spurious and done to cover up professional failings. Childrens social care/family court is just the wild west istm

I have tried once again to leave a star rating for some thing i bought - a book and another item, without leavinbg a written comment. Its not possible so one does wonder how those 5 star ratings got there

Ravn IIRC i have oft read the 'trauma/surgery etc can cause/initiate ME/CFS' thing in ME Association literature, i think it might even be in the purple book but i dont have energy to look it up sorry. I could be wrong but i'm pretty sure I've heard Dr Shepherd say it in interviews too. So asking...

I wasnt able to read the whole article only the health related bit at the beginning so i dont know if she comes back to it later. But I have enjoyed Kirsty's work in the past & i'm glad she's doing better. I'm also glad she makes it clear that she's been very fortunate...

indeed. What happens when 'heLPPRACTIONerfgun' applies? For those not getting my meaning i mean when a BPS fan/LP practitioner joins the forum and puts themselves forward.

I bleieve the MEA have been asking for peopel to point oit bad nhs local pages for a while - i remember they recently challeneged the nottingham one & got it changed. dont know where i saw that if it was here on the s4 thread or if it was on MEAfb. here i think but dont have energy to traw back...

:):heart::emoji_clap:

this is what i always worry about when i see 'patient involment' I think @Andy idea is great

i agee the reviews all very measured so far, excellent

I am wondering this morning if it (the ME chapter) was written partly to get us to take the bait. Lets be careful. We need to avoid (as far as possible) them being able to say 'See, see how they are going mad now, i only said what i remember, look at them ganging up on me, look at those...

yes & im sure 'quiet words' will be had now, explaining to him that 'we know its real and serious and just because CBT & GET help doesn't mean its imaginary. And saying its physical not psychological - well mental health is just as serious and for a minister to suggest otherwise...... blah blah...