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We are not currently classed as high risk. Dr Sheperhd of MEA wrote something on their FB page recently about it, sorry i cant find a link but if you go to their page & scroll down you'll find it.

Im wondering at what point NICE do defend themselves?

Goodnes i hope that paper is a useful one otherwise they will all be going up a blind alley. They can learn about the nature of PEM from their patients, but of course the patients voice about their own expeiernce isnt as credible as a published paper on it :-/

well done her. I can only imagine the scorn of the GP when she went in saying i've looked at my blood under a microscope! imagine if one of us did that!!!:jawdrop::laugh:

I dont see any lack of willingness to engage with the propositions of anyone, but to take them on board they have to be credible. To my mind it would be wrong to take, or not take, on board, something based on the speciality of whomever was doing the proposing. That seems highly unscientific to...

precisely.

Interesting. Makes sense to me Yes same for me, although eating ive not noticed it helping and i always lie in reclined position to do cognitive work so i dont think it can be that. yes me too, it is truly bizarre. Also if i walk too far/upright too long i become terribly cognitively impaired...

Yes anger is a sure fire analgesic for me, if i get really angry i feel what i can only describe -in comparison to how i normally feel- as fabulous! - Much more energy, strength & vigour, and my pain levels go right down. The problem is if i *use* that energy, i then pay for it as i normally...

sorry i wasn't able to read all of your post. But i understand you are pointing out the issue of adrenaline surges after/during massive over-exertion, or in crisis when we use adrenaline to do what is necessary, which leads to a massive crash? And i experience that - thats what i meant by...

I cant be sure but i think that is what the 'central sensitisation' theory is based on?

Because he retired yrs ago sadly, otherwise i would have done. No one knows me there now. Having done a bit of research online, i've read that SIBO testing & treatment is patchy across the nhs, bit of a postcode lottery perhaps. I think its likely a waste of energy pursuing it, especially at...

yeah... good luck with that. Sorry you were unable to get help @livinglighter the situation is scandalous

How on earth did you manage that Sasha?! I was under the impression that NHS gastros were mainly convinced that SIBO only occurs in people who have had part of their intestine removed. But I'm afraid i do have it on my notes yes. Or to be more precise Somatisation Spectrum Disorder. My GP, who...

I cant remember. I think it had pepsin in as that rings a strong bell. I did so many things read so many books, took advice from a nutrirional therapist, i cant remember the details of most of it, but i do remember follwoing a detailed set of instructions, i didnt just go to the shop & get a...

I've always found the low stomach acid argument compelling. In fact back in the day when i was trying dietary modifications to try to fix it i tried Supplementation with hydrochloric acid. It didnt help. I dont think it made it a great deal worse or anything it just made no difference. I also...

Awful. I dont have endo but had a similar experience of excruciating pain being dismissed & told 'nothing wrong with you' - by the time it was actually investigated (a year later & only because i was cajoled by friend into getting a second opinion), i had a cyst the size of a grapefruit. Lucky...

I couldnt read past the first few sentences. They reveal themselves immediately. Well im sorry but if you are seriously so utterly blind, so divorced from all empathy & imagination that you're unable to see, that far from the cause for higher incidences of depression being 'unknown', you have...

@TigerLilea I'm wondering how you're doing now? no pressure to reply, just thinking of you

hoping for the very best result for you @TigerLilea

i agree!!