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  1. Shadrach Loom

    The Pathobiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Case for Neuroglial Failure, 2022, Renz-Polster et al

    Without the scientific or medical background to tell duff arguments from good ones, the kicker for me was when the author mentioned near the end that he was himself an ME sufferer. When the perfect research paper is written, which ties together all the symptoms and potentially involved factors...
  2. Shadrach Loom

    Explain Pain - David Butler and Lorimer Moseley

    Classic case of repressed trauma.
  3. Shadrach Loom

    "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" (Bateman Horne Center)

    When I was offered the choice to download it in a variety of front page colours, I didn’t expect the content to be as thorough, detailed and sensible as it was.
  4. Shadrach Loom

    Explain Pain - David Butler and Lorimer Moseley

    Yep, true, still some fun stuff, and although I walked away with a philosophy degree thirty years ago assuming it would never prove relevant or helpful, it’s recently proved quite useful when playing expertise top trumps on anything from AI ethics to VR.
  5. Shadrach Loom

    Explain Pain - David Butler and Lorimer Moseley

    That slice of Plato, in the context of a thread which shows the domain of pain being held captive by psychologists whose main interest is “pain beliefs”, makes me think of the extraordinary range of subjects which philosophers got to play with in their glory days, before physics and...
  6. Shadrach Loom

    Over-exercising: How to find out if you're becoming addicted to working out

    Must admit, I never liked exercise even before I became intolerant to it, but I do know a chap who identifies as having PVFS, and who occasionally succumbs to temptation, goes to the gym and then feels wretched, in the same way that a normal human might lapse with cakes and bacon sandwiches.
  7. Shadrach Loom

    Exercise and chronic fatigue, 2021, Wrightson & Twomey

    The Hockey cited is a tome called “The Psychology of Fatigue”. Depressing stuff.
  8. Shadrach Loom

    Discord banned a ME/CFS server

    There’s something a little perturbing about subreddits getting very excited about nootropics that other nootropics subreddits are simply too square and conventional to even imagine. A quick look at r/nootropicsfrontline doesn’t assuage that disquiet much.
  9. Shadrach Loom

    How individuals with low back pain conceptualise their condition: A collaborative modelling approach, 2022, Hodges et al

    Brachiating from tree to tree is the answer. That’s what our anatomy is designed for, and we’re clearly unsuited to walking on hind legs, whether because of boring biomechanical issues like pressure on spinal discs, or more floridly Freudian reasons like bipedal anxiety which presents somatically.
  10. Shadrach Loom

    Who is Simon Wessely?

    He spoke at a conference they organised on mental health, keynoting with an “overview and update” of MH. The presentation he delivered is no longer available on the conference mini-site, but neither are those of the other speakers. I’ve produced conferences in my time and I’ve been married to a...
  11. Shadrach Loom

    United Kingdom: Action for ME (AfME) news

    Subtle, but bang on.
  12. Shadrach Loom

    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    A point made in the conclusion is the one which immediately came to mind when reading the thread title. Furthermore, as women are thought to seek help earlier in their disease process than men, they may present with more atypical complaints in general practice. These pose a challenge to...
  13. Shadrach Loom

    Perceived working mechanisms of psychosomatic therapy in patients with persistent somatic symptoms in primary care.., 2022, Wortman et al

    I don’t know what the guidelines currently are in the Netherlands, but is there any value in making representations to the ethics committees which permit this sort of research? This sort of statement, for instance, would presumably have informed the original proposals: Persistent somatic...
  14. Shadrach Loom

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    Not even sure if that makes it more sensible. Some traumas probably shouldn’t be reframed as stand up routines.
  15. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    i have tried and disliked it in a couple of showrooms. The strap that serves for back support is inadequate and uncomfortable. Even though it’s pitched as halfway between a disability aid and a personal mobility innovation, it looks depressingly medical - and antiquated, at that. Nothing offsets...
  16. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    This looks like an amazing bit of kit. 10 degrees gradient, full recline, all the head and neck support you could possibly want. https://www.wheelfreedom.com/products/sunrise-medical-quickie-q700-m-powerchair £7.5k, but at 8mph it should be a more than capable getaway vehicle if you chose to...
  17. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    @Kitty your advice on all this has been fantastic, so helpful.
  18. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    http://www.bikehike.co.uk/mapview.php Hopefully interesting to scooterists wME: this site tells you the gradient of any stretch of road, useful when planning routes for mobility scooters that have gradient limits. Turns out I can get to the step free tube station a mile away without exceeding...
  19. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    So to be fair to Wheelfreedom, I absolutely loved the Atto Sport. Super comfortable once adding the optional cushion, passed the glove and wheelybin tests, and although it tipped onto two wheels slightly when subjected to top-speed slaloms on adverse cambers, it felt reasonably stable under...
  20. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    That’s interesting. We discussed our criteria on the phone before booking the appointment (it’s an hour away from us) so to be fair we were rather pushing them to suggest a model, but once they’d settled on a recommendation (Atto Sport) they seemed quite fixated on it. Chimes with your experience.
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