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I've grown it for decades, I love it – as do bumblebees, as the plants produce a lot of nectar. It rarely needs handling anyway, but it's easy enough to wash your hands afterwards. Quite a lot of the crowfoots are toxic to some degree or other.

There is a gap, though: the issue of teaching the recently-diagnosed patient to go against their own instinct to build up their activity levels gradually in the expectation of eventual recovery, and to ignore the insistence of their family and friends that rest is something you can only safely...

merged thread New article, old story: https://www.theguardian.com/society/2021/may/03/its-terrifying-parents-struggle-to-get-help-for-children-with-long-covid It's good news that Michael Rosen has agreed to be a trustee of the parents' group, though I don't know how aware he is about what...

Thank you for pursuing this so vigorously! Would publication of the finalised NICE guidelines add weight to that complaint? Persuading a regulator to act would be an important moment with potentially far-reaching consequences, so if it would add to the argument, is it worth waiting a few...

I hit this too, though it wasn't that far ahead. As my pension's barely worth having anyway at £90 a month, and all income is deducted pound for pound from my ESA, I decided not to bother arguing! It came into payment when I hit 60. Allowing rest breaks when needed is the only way many people...

Perhaps the biggest thing they could do to enable people with ME to take self-employed work when they can is allow them to step on and off ESA, without being punished for making the effort to work. I was basically forced out of work, because although I could manage part time for several months...

I though that if it's inside your room, it wouldn't be visible outside? It also looks like part of normal decor, as opposed to door seals (not that any of that would bother me anyway, but it sounds as if your dad is more picky!)

Yes, I think I'd have been equally annoyed. If he really objects to the appearance, the other potential solution is a door curtain on your side of the door. These work really well if the curtain is made of thick fabric with plenty of gathering, and is hung from a close-fitting rail (not a pole)...

If this is the meaning: "Cerebral misery perfusion (CMP) is a condition where cerebral autoregulatory capacity is exhausted, and cerebral blood supply in insufficient to meet metabolic demand." ...then misery makes more sense to me? At least inasmuch as miserly is behavioural, whereas misery...

Isn't it – it shows that some of us think we don't have enough information about it. I suggested it because I was struck by something @Jonathan Edwards posted a couple of months ago, re doctors learning about a disease by sitting down and listening carefully to what a group of patients tells...

As a quick fix, if you have a big fleece throw or even a fairly thin old towel, chuck that over the door before shutting it. It'll reduce the amount of light bleeding through by quite a bit. I do this every night with one of the old throws I used to put over the bed for my cat to sleep on, and I...

I thought about this the other day. I saw a report on a news website about a small trial where GPs would be able to prescribe financial and welfare benefits advice, to combat the stress and depression associated with being in severe financial difficulty. If skilled advisers were available...

A few basic research questions that occur to me: What are the illness patterns in ME? (What proportion have a relapsing/remitting illness, what proportion remain broadly stable as long they pace well and manage to avoid other illnesses, surgeries, and major life events, and what proportion...

If you ever have the emotional energy, is it worth trying to explain that you're not looking for solutions? As well as having fun, one of the things good friends do is allow us to talk about our feelings. Their role is to listen and be understanding, without trying to fix us. They don't always...

I'm sorry this has happened to you, @unicorn7, it's always really upsetting when a friend lets you down like that. I used to feel guilty about the fact that I'd have made a terrible friend to an ME patient when I was young. I wouldn't have had a clue, and I'm sure there would have been times...

If you go to this page, @Peter Trewhitt: https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors#Text_of_my_Complaint_Letter Then click Ctrl + F (or however you usually get to 'find') and enter the following words into the search box: Complaint here as below ...that...

It's also not unique to ME. Mine predates ME by years, and many of the numerous aunties and cousins on my mum's side of the family have OI. Quite a few of us were regular school assembly fainters in the days when you stood up throughout; as adults, we just feel ill, clammy and nauseous. As far...

I agree. Communities don't tend to make apologies because they're so rarely involved in negative actions as a group. Institutions do, as they are led by a small number of people who make decisions, determine policy, and are responsible for organisational culture. But the loose coalitions of...

Of course not. The confusion often seems to be between how psychology can affect a person's experience of a condition, rather than the condition itself. Take attitudes to signs and symptoms. Sharpe and his chums deliberately gloss over the issue of which people can safely try to live with, and...

'Pacing up' sounds like a contradiction in terms! :rolleyes: Gradually building up activity levels after an injury makes complete sense, but you can't apply it to ME because there are always snakes as well as ladders. It demonstrates that either the practitioner or the patient is denying the...