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  1. Kitty

    The need for a standardized conceptual term to describe invalidation of patient symptoms, 2021, Bontempo

    I wondered whether this was the best term, but I'm not sure. Partly because it may not translate culturally and linguistically, and partly because the original meaning was specifically about manipulating someone psychologically into believing that they're insane. In the case of people with...
  2. Kitty

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But on the other hand, if I kept telling the world I went swimming last week and it was my enormous determination and strength of character that stopped me picking up the verruca virus from the changing room floor, at least everyone would know I'm so stupid that I ought to be sidelined...
  3. Kitty

    Symptoms of Covid-19

    Absolutely – they don't want to pass it on to anyone if they can help it, which is another reason for letting everyone know that the symptoms could be mistaken for a cold.
  4. Kitty

    Symptoms of Covid-19

    I think a lot of the transmission is between younger people and children, who usually wouldn't be made seriously ill by any of the variants. The problem comes when they encounter someone more vulnerable, whose vaccine protection hasn't worked very well. The publicity is because there's a...
  5. Kitty

    Symptoms of Covid-19

    Merged thread - Delta variant Covid symptoms ‘include headaches, sore throat and runny nose’ Title says it all, really – here's a Guardian article suggesting the symptoms of this variant may not always be recognised, especially in mild cases affecting young people...
  6. Kitty

    Healthcare Hubris - blogs on the biopsychosocial model by Joanne Hunt

    In the meantime, if you're using a computer, the article pastes very easily into a word processor document. I do this with most longish articles so that I can go through and break up the paragraphs into a manageable length before I attempt to read the text, but of course you can also change the...
  7. Kitty

    Covid-19 vaccination experiences

    Thank you, I hadn't heard of him before. Honestly, if I could have the effect I got from AZ #1 once a week, I'd almost be back to normal function! The only vaccine I have regularly is the annual 'flu jab, but unfortunately it doesn't do the same. Other than an occasional slight bruise where it...
  8. Kitty

    Covid-19 vaccination experiences

    I got that too, after AZ. Less with the second dose than the first, but it's lovely while it lasts, isn't it. If it weren't for the fact it makes some folk much worse, I'd be hoping that we all need a booster at some point! :laugh:
  9. Kitty

    Does pain neuroscience education appear to work because it teaches patients to downplay their pain?

    Yes – and the trouble with releasing something like R.I.C.E. into the wild is that even if you're the most curious and least status-conscious scientist in the world, you can't call it back! It will stay in people's minds, often for decades. Folk who get niggles from training that aren't bad...
  10. Kitty

    Does pain neuroscience education appear to work because it teaches patients to downplay their pain?

    [Tacky advertising jingle]: Thaaaat's the BPS method, folks! The only explanation I can come up with is that they think chronic pain is on the level of general traffic noise, which you soon learn to tune out when you live right next to a busy road. They forget that it's not really feasible...
  11. Kitty

    Post-Exertional Malaise ... Related to Central Blood Pressure, Sympathetic Activity and Mental Fatigue in [CFS] Patients, 2021, Kujawski, Newton et al

    Indeed! I also wouldn't be surprised if some of them don't realise they have PEM because no-one's explained the concept properly.
  12. Kitty

    UK: NHS data sharing – deadline imminent

    I saw this too, and checked whether signing the Type 2 form (a sort of global opt-out) gave better security. Apparently it doesn't, and Type 1 is the best for this particular exercise. I crossed out the word 'identifiable' on my form, as well as signing it. My GP is one of those who's...
  13. Kitty

    UK: NHS data sharing – deadline imminent

    I did the same. And Type 1 opt-outs, which is the only one to use for this, are due to be phased out before too long – so there may be another hoop to jump through. :rolleyes:
  14. Kitty

    UK: NHS data sharing – deadline imminent

    Our surgery campaigned quite hard against the last initiative a few years ago, and encouraged patients to opt out because the doctors felt the information would not be used in our interests. They even provided forms. I think they're too overwhelmed this time, though. And it appears that as long...
  15. Kitty

    UK: NHS data sharing – deadline imminent

    I'm not sure how widely known this initiative is, but NHS Digital is planning to scrape enormous quantities of data from UK patient records to share with third parties (it's not clear who these are, but they could well be insurance providers and other commercial interests). The data will be...
  16. Kitty

    Designing a questionnaire on ME/CFS onset

    It usually means getting worse again, after experiencing (whether due to treatment or the natural course of an illness) an improvement in symptoms. I think it's generally taken to mean deteriorating due to the same condition, though I suspect it's often quite hard to know for sure, specially as...
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